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Resilient Raimey: Life AFTER Single Ventricle
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UPDATE: On 3/24/2026, Raimey received a new lease on life when she had a Combined Heart and Liver Transplant.

Resilient Raimey is the story of our 16 year old daughter, living with a Single Ventricle Heart, also known as Hypoplastic Right Heart Syndrome.

Raimey had the Glenn and the Fontan open heart surgeries.
Raimey received no medical care for the first two-and-a-half years of her life in an orphanage. This has likely impacted her heart function and caused some of these longer term effects to occur sooner than would be normal.

Nonetheless, RESILIENT Raimey keeps on fighting her battle with Congenital Heart Disease. She lives big and has a boisterous personality (except on camera)! Raimey loves family, cats, cooking, swinging and writing stories.

Come along on our journey as we discuss the next phase of the journey: heart transplant. And, share about things we have learned along the way living this life of faith in a God with a much greater plan than we could ever understand.


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4:20

2 Month Update: Post Op Combined Heart and Liver Transplant #hearttransplant #livertransplant #chlt

Resilient Raimey: Life AFTER Single Ventricle

Shared 1 month ago

22 views

1:15

2 Weeks Post Op: Pediatric Combined Heart and Liver Transplant #chlt #hearttransplant #liver

Resilient Raimey: Life AFTER Single Ventricle

Shared 2 months ago

41 views

1:40

Raimey’s Combined Heart and Liver Transplant: Post Op Day 2 #hlhs #hrhs #transplant #fald #chlt

Resilient Raimey: Life AFTER Single Ventricle

Shared 3 months ago

66 views

1:21

THE CALL: A Donor Match for Combined Heart and Liver Transplant #chd #hlhs #hrhs #transplant

Resilient Raimey: Life AFTER Single Ventricle

Shared 3 months ago

34 views

1:01

Benefits of Horse Therapy: Balance, Communication & Motor Planning #strokerecovery #horsetherapy

Resilient Raimey: Life AFTER Single Ventricle

Shared 3 months ago

20 views

0:58

Crater Lake, Oregon Flyover: Beautiful Scenery #oregon #flyover #beautiful #craterlake

Resilient Raimey: Life AFTER Single Ventricle

Shared 4 months ago

17 views

3:54

One year of waiting for a Heart: Arrhythmias, Holter Monitor and More #hlhs #hrhs #chd #chdwarrior

Resilient Raimey: Life AFTER Single Ventricle

Shared 5 months ago

157 views

2:45

16 years with Half a Heart: HLHS #hlhs #hrhs #chd #chdwarrior #adoption #adoptionislove

Resilient Raimey: Life AFTER Single Ventricle

Shared 5 months ago

36 views

5:40

What I WON’T tell my Employer: HIPAA (You might disagree!)

Resilient Raimey: Life AFTER Single Ventricle

Shared 9 months ago

31 views

2:34

Raimey’s Adoption from China: December 2011

Resilient Raimey: Life AFTER Single Ventricle

Shared 10 months ago

17 views

7:06

Waiting for a Heart Transplant: 7 month update & FALD *Fontan Associated Liver Disease*

Resilient Raimey: Life AFTER Single Ventricle

Shared 10 months ago

29 views

3:43

6 months on the Heart Transplant List: Update on Life While We’re Waiting

Resilient Raimey: Life AFTER Single Ventricle

Shared 11 months ago

15 views

1:05

Summer Snack & Entertainment for Chickens

Resilient Raimey: Life AFTER Single Ventricle

Shared 11 months ago

27 views

2:45

My beautiful life with Half a Heart

Resilient Raimey: Life AFTER Single Ventricle

Shared 1 year ago

16 views

2:23

Waiting for a heart transplant: 5 month update

Resilient Raimey: Life AFTER Single Ventricle

Shared 1 year ago

10 views

3:46

Cleaning out (and review of) the Shark Matrix Pro ROBOT VACUUM

Resilient Raimey: Life AFTER Single Ventricle

Shared 1 year ago

11 views

4:22

Managing Severe Nosebleeds: Life with the Fontan #heartdefect #hlhs #chd #fontan #nosebleeds

Resilient Raimey: Life AFTER Single Ventricle

Shared 1 year ago

15 views

0:29

Funny chicken antics: silly hens

Resilient Raimey: Life AFTER Single Ventricle

Shared 1 year ago

9 views

7:43

Waiting for a heart transplant: 3 month update/ FALD (Fontan Associated Liver Disease)

Resilient Raimey: Life AFTER Single Ventricle

Shared 1 year ago

21 views

5:07

Pill Endoscopy Results / Stage 3 FALD (Fontan Associated Liver Disease) / Heart Transplant

Resilient Raimey: Life AFTER Single Ventricle

Shared 1 year ago

37 views

3:17

Capsule Pill Endoscopy/ Esophageal Varices Check / Heart Transplant Testing

Resilient Raimey: Life AFTER Single Ventricle

Shared 1 year ago

32 views

3:12

Saying goodbye to her heart / Praying for a donor #hearttransplant #chdawareness

Resilient Raimey: Life AFTER Single Ventricle

Shared 1 year ago

31 views

2:17

Heart Transplant Decision: Stage 3 FALD, Sick Sinus Syndrome with Failed Pacemaker #hlhs

Resilient Raimey: Life AFTER Single Ventricle

Shared 1 year ago

29 views

11:25

Heart Transplant Evaluation PT 2 / FALD: Fontan Associated Liver Disease

Resilient Raimey: Life AFTER Single Ventricle

Shared 1 year ago

69 views

6:41

Stage 3 FALD: Fontan Associated Liver Disease, Sick Sinus Syndrome and Heart Transplant Evaluation

Resilient Raimey: Life AFTER Single Ventricle

Shared 1 year ago

29 views

6:20

Sickness, complications and a health update: Nov. 2024

Resilient Raimey: Life AFTER Single Ventricle

Shared 1 year ago

23 views

2:12

Attending Fontan Conference; Single Ventricle Stories

Resilient Raimey: Life AFTER Single Ventricle

Shared 1 year ago

11 views

8:45

HOW to get a SECOND OPINION and NAVIGATE INSURANCE

Resilient Raimey: Life AFTER Single Ventricle

Shared 1 year ago

28 views

3:40

CARDIAC Loop Monitor Implant Day and Recovery / Life after the Fontan

Resilient Raimey: Life AFTER Single Ventricle

Shared 1 year ago

3.7K views

2:35

CHD Tips for School/ Living with the FONTAN

Resilient Raimey: Life AFTER Single Ventricle

Shared 1 year ago

30 views

1:41

L5/S1 MICRODISCECTOMY: My biggest SURPRISE / 6 week recovery

Resilient Raimey: Life AFTER Single Ventricle

Shared 1 year ago

70 views

13:25

PART 2 of my PACEMAKER Story / MRSA Infection & Removal Surgery

Resilient Raimey: Life AFTER Single Ventricle

Shared 1 year ago

80 views

5:13

My EPICARDIAL Pacemaker / Sick Sinus Syndrome / Low Heart Rate

Resilient Raimey: Life AFTER Single Ventricle

Shared 1 year ago

76 views

1:05

BEST Home Heart Monitors / Pulse Oximeters

Resilient Raimey: Life AFTER Single Ventricle

Shared 1 year ago

22 views

2:18

Getting the FLU with HEART FAILURE/ What we MONITOR

Resilient Raimey: Life AFTER Single Ventricle

Shared 1 year ago

20 views

3:02

My LIVER BIOPSY results 12 years post Fontan / CHD Single Ventricle Heart

Resilient Raimey: Life AFTER Single Ventricle

Shared 1 year ago

23 views

0:43

UNBELIEVABLE things I do in HEART FAILURE / HF at 15 years old

Resilient Raimey: Life AFTER Single Ventricle

Shared 1 year ago

15 views

5:54

HEART FAILURE at 15 / My CHD Journey

Resilient Raimey: Life AFTER Single Ventricle

Shared 1 year ago

39 views

0:47

TRIBUTE to China Adoption / Our two daughters

Resilient Raimey: Life AFTER Single Ventricle

Shared 1 year ago

64 views

3:42

Introduction To Raimey’s CHD Journey

Resilient Raimey: Life AFTER Single Ventricle

Shared 1 year ago

80 views