Resilient Raimey: Life with a Single Ventricle
Resilient Raimey is the story of our 15 year old daughter, living with a Single Ventricle Heart, also known as Hypoplastic Right Heart Syndrome.
Raimey had the Glenn, the first stage surgery for single ventricle hearts at 2 1/2 years old and the Fontan, second stage surgery at 4 years old.
Raimey received no medical care for the first two-and-a-half years of her life in an orphanage. This has likely impacted her heart function and caused some of these longer term effects to occur sooner than would be normal.
Nonetheless, RESILIENT Raimey keeps on fighting her battle with Congenital Heart Disease. She lives big and has a boisterous personality (except on camera)! Raimey loves family, cats, cooking, swinging and writing stories.
Come along on our journey as we discuss the next phase of the journey: heart transplant. And, share about things we have learned along the way living this life of faith in a God with a much greater plan than we could ever understand.
Resilient Raimey: Life with a Single Ventricle
Raimey was born with a Congenital Heart Defect called a Single Ventricle Heart. It is also known as Hypoplastic Right Heart Syndrome.
Raimey had the Glenn, her first open heart surgery when she was 2 1/2 years old and the Fontan, her second open heart surgery when she was 4 1/2 years old.
At 15 years old, she had surgery to place an Epicardial Pacemaker in her sternum but a few weeks later, she ended up with a severe MRSA infection and had to have her pacemaker removed. She underwent 6 weeks of antibiotics and was on the road to recovery.
Just a few weeks later, our lives changed dramatically when she was diagnosed with Heart Failure.
She is now being considered for Heart Transplant.
Follow Resilient Raimey as we share her brave journey.
1 year ago | [YT] | 2
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