Rare Disease Day, 28 February 2026

Management of Familial Cavernoma

CAUK Christmas Special Webinar with TV doctor, author and surgeon Gabriel Weston

Surgical Management of Brainstem Cavernoma

Where will cavernoma treatment be in the next 20 years?

Statins and Cavernoma: AT CASH EPOC trial insights

Cavernoma 101 - Understanding your diagnosis

What have we learnt in the last 20 years about cavernoma?

Managing Overlooked Cavernoma Symptoms

Michael's Story - Supporting someone with cavernoma

Georgina's Story - Spinal Cavernoma

Lived Experiences: Using the Grief Recovery Method to Heal and Move Forward

Stereotactic Radiosurgery (SRS) for Cavernoma - Mr. Matthias Radatz

Management of Cavernoma Related Epilepsy - Mr. Jibril Farah

Rare Disease Day, 28th February 2025

Mental Health & Cavernoma - with Dr Anita Rose and Robyn Hughes

Navigating changing lives: What helps?

Emergency Cavernoma Surgery

Misdiagnosis and surgical uncertainty - A patients perspective

Cavernoma Management, Surgery, Radiosurgery and Surveillance Lecture

Lived Experience Panel chaired by Alex Ford (Annual Conf 2024)

ROCK2 Inhibitors with Ovid Therapeutics and Graviton

Focused Ultrasound with Delaney Fisher

The CARE Study with Professor Rustam Al-Shahi Salman

Kim Larkin - Personal Independence Payments (PIP) and Cavernoma

Predicting Familial Cavernoma Progression using BioMarkers

Jade's Story - Familial Cavernoma

Roxanna's Story - Asymptomatic Cavernoma

The Spinal Cord and Cavernoma with Mr Daniel Walsh

Oral contraception, HRT and cavernoma with Dr Susanna Zuurbier

Christmas Message 2023

How to successfully manage tinnitus with cavernoma - Dr Edmund Farrar, Co-Founder & CEO of Oto

Through the surgeon's eyes with Mr Dan Brown, Consultant Neurosurgeon

What we have learned from the UK's largest clinical trial for cavernoma Prof Rustam Al-Shahi Salman

What is the latest research telling us about what medications help? - Connie Lee

Paediatric neurology and what the future looks like - Dr Greg James

Sacha's story - brainstem cavernoma

Emily's story - left temporal lobe cavernoma

Steve Cairns - Recovering Movement Following Stroke & Brain Surgery, a New Perspective

Dr Shelly Stevens - The Gut - Cavernoma Connection Emulsifiers and More

Let's Talk Cavernoma - Bleeding and Stroke Explained

Cognitive Symptoms and thinking

Forum 2022 - Dr Anita Rose - Cavernoma and Anxiety

Forum 2022 - Dr Helmut Bertalanffy - Brainstem Cavernoma

Forum 2022 - Dr Grace Vassallo - The future of paediatric neurology

Moving Forward with Cavernoma Treatments Webinar with Connie Lee

What do MRI and CT scans tell you?

Pregnancy and Cavernoma with Professor Catherine Nelson-Piercy

Introduction to CARE Study with Professor Rustam Al-Shahi Salman and Mr Neil Kitchen

Minimally invasive approaches, cavernomas and decision making

How Cavernoma Grow : The role of a gene mutation linked to some Cancers (Science of Cavernoma)

Fiona Holiday - The Elephant and The Thinking Brain - Emotions, Experiences and Well-Being

Dr Ian Kamaly-Asl - Risk with Activities for Patients with Cavernous Malformations

Will Sears Poem for Brain Awareness Week 2021

Will Sears Poem for Rare Disease Day 2021

CAUK - Rare Disease Day 2021

Elliot Langstaff - My Experience with Gamma Knife Surgery

Kay Garner - Member Story

Kathryn Douthwaite - Member Success with PIP Applications

Will Sears - They said No, I said Yes!