The Rare Ruby (Living with FOP) - Invidious

The Rare Ruby (Living with FOP)

WELCOME TO THE RARE RUBY
A poetic lens on resilience + rare strength.

I share Fibrodysplasia Ossificans Progressiva (FOP) awareness through storytelling, visuals, and soft, soulful poetry.
Here, rarity is power, vulnerability is art, and no one walks alone.

What to expect:
• Poetic mini-films
• Gentle reflections on strength
• Calm, inspiring visual stories

Stay rare. Stay radiant. Stay unbreakable.
You’re not just watching—you’re witnessing rare strength.
Subscribe and walk this journey with me.

Hashtags:
#TheRareRuby #FOPAwareness #RareDiseaseCommunity #StorytellingCreator #PoeticVideos #InspirationDaily #ResilienceStories
#nigerianstory

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5:15

For the Ones Who Care #rarediseaseawareness #disabilitysupport

The Rare Ruby (Living with FOP)

Shared 12 hours ago

0 views

5:33

If I Could Tell My Younger Self One Thing #LetterToMyYoungerSelf #GentleStrength

The Rare Ruby (Living with FOP)

Shared 1 week ago

3 views

8:36

what I wish people understood about rare diseases#rarediseaseawareness #rarevoices

The Rare Ruby (Living with FOP)

Shared 2 weeks ago

0 views

5:40

Understanding FOP: What Everyone Should Know #fopawareness #raredisease

The Rare Ruby (Living with FOP)

Shared 3 weeks ago

0 views

5:26

What People Get Wrong About Disabilities #disabilityawareness #fopawarenessnigeria #resilience

The Rare Ruby (Living with FOP)

Shared 3 weeks ago

1 view

5:08

Let's celebrate ourselves today #selflove#selfloveandhealing #softlife

The Rare Ruby (Living with FOP)

Shared 1 month ago

1 view

5:59

What you see vs What I feel #emotionalstorytelling #motivation

The Rare Ruby (Living with FOP)

Shared 1 month ago

2 views

6:41

How I Learned to Love a Life I Didn't Choose #selflove #healingjourney #nigerianstory

The Rare Ruby (Living with FOP)

Shared 1 month ago

5 views

6:49

💎 Transforming Pain into Art and Awareness | My FOP Story of Strength | A Rare Ruby Original

The Rare Ruby (Living with FOP)

Shared 1 month ago

3 views

5:49

The Moment That Changed My Perspective #fopawareness #personaldevelopment #nigerianstory

The Rare Ruby (Living with FOP)

Shared 2 months ago

8 views

5:02

Awareness in Action: The Truth About FOP #fopawareness #nigerianstory #raredisease

The Rare Ruby (Living with FOP)

Shared 2 months ago

8 views

5:10

My Body Turns to Bone 💎 | A Nigerian Story of Strength and Survival. #awarenessNigeria

The Rare Ruby (Living with FOP)

Shared 2 months ago

5 views

2:21

Doctors call it FOP, I call it My Rare Reality 💎🌹#fopawareness #motivationalshorts

The Rare Ruby (Living with FOP)

Shared 2 months ago

7 views