WELCOME TO THE RARE RUBY
A poetic lens on resilience + rare strength.
I share Fibrodysplasia Ossificans Progressiva (FOP) awareness through storytelling, visuals, and soft, soulful poetry.
Here, rarity is power, vulnerability is art, and no one walks alone.
What to expect:
• Poetic mini-films
• Gentle reflections on strength
• Calm, inspiring visual stories
Stay rare. Stay radiant. Stay unbreakable.
You’re not just watching—you’re witnessing rare strength.
Subscribe and walk this journey with me.
Hashtags:
#TheRareRuby #FOPAwareness #RareDiseaseCommunity #StorytellingCreator #PoeticVideos #InspirationDaily #ResilienceStories
#nigerianstory
The Rare Ruby (Living with FOP)
This year, may you give yourself
the permission you’ve been waiting for:
to rest,
to pause,
to simply be.
Some days will whisper.
Some days will roar.
All of them are yours to feel in 2026.
As we step into this new year,
I want to know…
What helped you stay gentle last year?
What will help you stay gentle this year?
Stay rare. Stay radiant. Stay unbreakable.
1 week ago (edited) | [YT] | 1
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The Rare Ruby (Living with FOP)
1 week ago | [YT] | 1
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The Rare Ruby (Living with FOP)
Quick reminder for your heart:
Some days, self-worth whispers. Other days, it sings.
But it’s always there — steady, gentle, waiting for you to notice it.
Say this slowly:
✨ “I deserve love. I deserve rest. I deserve peace.
My value is not up for debate.
I am allowed to take up space.” ✨
Drop one word that describes how you want to feel this week. 🌸
1 month ago | [YT] | 1
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The Rare Ruby (Living with FOP)
There’s a kind of pain that doesn’t scream — it whispers.
And I used to think silence was my escape… until it became my story.”
Today, I’m learning that even silence can speak — through art, through awareness, through courage.
Let’s build a space for stories that heal.
💬 Share one word that describes your strength today.
Have you ever found beauty in something that once broke you? 💎
#TheRareRuby #FOPAwareness #TransformingPain #PoeticHealing
1 month ago | [YT] | 0
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The Rare Ruby (Living with FOP)
Life no easy sometimes, but we still move. 🙏🏽
In this new vlog, I’m showing what a normal day looks like living with FOP — no pity, just purpose.
Watch, learn, share — awareness starts with understanding.
💎 A Day in My Life: Living with FOP
#TheRareRuby #FOPAwareness #Nigeria
#FacelessVlog
2 months ago | [YT] | 1
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The Rare Ruby (Living with FOP)
2 months ago | [YT] | 0
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