My Story Living with Lupus - Invidious

My Story Living with Lupus

Hello, I'm Susan L. Hendrix the creator of My Story Living With Lupus Podcast. I have lived with the signs and symptoms of SLE since the age of 5, but was not clinically diagnosed until 2004. You will hear about my journey the up's and down's that I go through with Lupus and it's 39 plus over lapping conditions that it has caused. You will also hear from other Lupus warrior's along with others who are not only surviving but thriving.

You will find informative and helpful information regarding this chronic illness that affects more than 5 million world wide, it is most prevalent in women of color and there is no cure. So your cup of coffee, cup of tea and if your listening late at night I truly appreciate you so grab your favorite glass of wine and join us.
Disclaimer: My Story Living with Lupus Podcast is officially Trade Marked All Rights Reserved. The Views and Opinions expressed on My Story Living with Lupus Podcast represents each persons individual experience.

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1:08

From Lupus to a Pacemaker | What No One Tells You 💔 #Shorts

My Story Living with Lupus

Shared 5 days ago

5 views

2:19

Why Your Hand Pain Isn't Always Arthritis

My Story Living with Lupus

Shared 6 months ago

18 views

3:50

Living with SLE & Discoid Lupus (Part 2): Rare Case Study, Skincare Tips & Heat Trigger Warnings

My Story Living with Lupus

Shared 6 months ago

934 views

20:34

Lupus Rash? What Discoid Lupus Really Looks Like

My Story Living with Lupus

Shared 7 months ago

112 views

6:07

Bladder Cancer Risk: Are You Ignoring These Warning Signs?

My Story Living with Lupus

Shared 7 months ago

47 views

3:25

Discoid Lupus & Systemic Lupus: Can You Have Both? Symptoms, Diagnosis & Treatment Explained

My Story Living with Lupus

Shared 8 months ago

61K views

1:46

The Silent Struggle: Why Black Men with Lupus Face Higher Risk and Less Support

My Story Living with Lupus

Shared 8 months ago

39 views

0:33

Join the #PurplePowerChallenge for Lupus Awareness Month | Wear Purple & Share Your Story!✅

My Story Living with Lupus

Shared 8 months ago

3 views

5:39

Dry Eyes & Joint Pain? It Could Be Sjögren’s

My Story Living with Lupus

Shared 8 months ago

235 views

0:42

"Take Control of Your Health: Empower Your Wellness Journey with Lupus 💪🏽 | My Story Living With Lup

My Story Living with Lupus

Shared 8 months ago

8 views

15:43

The Pain No One Sees: Living with Lupus & Feeling Completely Alone

My Story Living with Lupus

Shared 8 months ago

66 views

2:14

Black Men & Lupus: Breaking the Silence on Chronic Illness

My Story Living with Lupus

Shared 9 months ago

16 views

4:17

"Doctors Ignored My Symptoms – The Truth About Medical Gaslighting"

My Story Living with Lupus

Shared 9 months ago

56 views

4:47

"Lupus & Liver Disease: The Hidden Dangers You Need to Know | Symptoms, Risks & Treatments"

My Story Living with Lupus

Shared 9 months ago

89 views

5:40

"Living with Discoid Lupus: Must-Know Symptoms, Treatments & Triggers to Avoid!"

My Story Living with Lupus

Shared 9 months ago

180 views

5:23

"Rare Lupus," "You NEED to Know," and "What You Must Know"

My Story Living with Lupus

Shared 9 months ago

1.5K views

2:33

"Does an Extra X Chromosome Increase Autoimmune Disease Risk? | Lupus & Sjögren’s Explained"

My Story Living with Lupus

Shared 10 months ago

39 views

3:26

“Lupus Misdiagnosis: The Hidden Dangers & How to Protect Yourself”

My Story Living with Lupus

Shared 10 months ago

262 views

10:58

Lupus Doesn’t Stop Me: A Day in My Life with Chronic Illness

My Story Living with Lupus

Shared 10 months ago

9 views

5:25

Postpartum Lupus Flare: Causes, Risks & How to Prevent It

My Story Living with Lupus

Shared 10 months ago

189 views

4:32

Benign Ethnic Neutropenia & the Duffy Antigen Explained | My Personal Discovery

My Story Living with Lupus

Shared 10 months ago

374 views

3:44

"Omega-3 for Lupus: Game Changer or Flare Trigger?"

My Story Living with Lupus

Shared 10 months ago

38 views

3:53

Did You Know? Lupus & pH Imbalance in Women and Men

My Story Living with Lupus

Shared 11 months ago

42 views

2:43

Summer Essentials 2025-What To Wear When You Have Lupus

My Story Living with Lupus

Shared 11 months ago

33 views

4:08

Beyond the Surface: Unmasking Invisible Illness

My Story Living with Lupus

Shared 11 months ago

57 views

0:54

😂 "‘But You Don’t Look Sick!’ – Oh Wow, Guess My Lupus is CURED! 🤦‍♀️💜"

My Story Living with Lupus

Shared 11 months ago

11 views

8:27

Relationship Between Lupus and Fibroids

My Story Living with Lupus

Shared 11 months ago

388 views

4:30

Pregnancy & Lupus: What You Need to Know

My Story Living with Lupus

Shared 11 months ago

725 views

3:15

Living with Lupus and Navigating Menopause

My Story Living with Lupus

Shared 1 year ago

36 views

3:29

Lupus and Yeast Infections: What’s the Connection?

My Story Living with Lupus

Shared 1 year ago

179 views

4:10

Understanding SLE Flare Ups: Causes and Triggers

My Story Living with Lupus

Shared 1 year ago

32 views

1:45

"Lupus & Heavy Periods: Causes, Treatments, and Self-Care Tips

My Story Living with Lupus

Shared 1 year ago

39 views

3:27

Don't Worry It's Only A UTI

My Story Living with Lupus

Shared 1 year ago

273 views

0:40

"I Have Lupus: You Can’t See It, But I Feel It 💜 | The Truth About Invisible Illness"

My Story Living with Lupus

Shared 1 year ago

5 views

0:46

This Is Not Easy

My Story Living with Lupus

Shared 1 year ago

21 views

15:36

Holiday Blues

My Story Living with Lupus

Shared 1 year ago

24 views

0:26

"Top Advice for Anyone Newly Diagnosed with Lupus 💜"

My Story Living with Lupus

Shared 1 year ago

76 views

9:57

How STDs Affect Lupus: What You Need to Know to Stay Healthy

My Story Living with Lupus

Shared 1 year ago

73 views

5:03

Real Talk About Vaginal Dryness & Lupus

My Story Living with Lupus

Shared 1 year ago

1.7K views

5:57

"Lupus & Stomach Cancer: Why You NEED Helicobacter Pylori Screening!"

My Story Living with Lupus

Shared 1 year ago

22 views

4:26

My Grief Story: How I Survived Losing Someone Close to Me

My Story Living with Lupus

Shared 1 year ago

11 views

4:02

You Can't Fit Me Into A Box:

My Story Living with Lupus

Shared 1 year ago

7 views

10:51

Lupus and Pharmacotherapeutics: Understanding Treatment Options 2024 09 12

My Story Living with Lupus

Shared 1 year ago

25 views

5:45

Do You Know Your Health Care Rights 2024 09 03

My Story Living with Lupus

Shared 1 year ago

8 views

4:49

"Life-Changing Hacks for Chronic Illness: Small Tweaks, Big Results!"

My Story Living with Lupus

Shared 1 year ago

3 views

3:03

Characteristics Of Life: Living With Chronic Illness 2024 09 02

My Story Living with Lupus

Shared 1 year ago

18 views

0:41

Fact vs Fiction: Neuropsychiatric Disorder in Lupus 2024 08 27

My Story Living with Lupus

Shared 1 year ago

21 views

5:00

Fact vs Fiction: Lupus and Celiac Disease 2024 08 26

My Story Living with Lupus

Shared 1 year ago

84 views

2:02

Fact vs Fiction: Brain Fog & Lupus 2024 08 24

My Story Living with Lupus

Shared 1 year ago

11 views

5:37

Pancytopenia Explained the Whys & What's 2024 08 20

My Story Living with Lupus

Shared 1 year ago

107 views

5:11

Understanding Lupus, The Invisible Battle 2024 08 18

My Story Living with Lupus

Shared 1 year ago

13 views

0:59

Fact vs Fiction Lupus and Alcohol 🍷❌ 2024 08 12

My Story Living with Lupus

Shared 1 year ago

84 views

1:02

Fact vs Fiction Lupus and Your Eyesight 2024 08 12

My Story Living with Lupus

Shared 1 year ago

57 views

0:47

1080 Lupus and Body Image Embrace Your Beauty 2024 08 05

My Story Living with Lupus

Shared 1 year ago

38 views

0:16

My Smile Hides the Pain Inside

My Story Living with Lupus

Shared 1 year ago

13 views

0:42

Living with Lupus Life Expectancy & Tip 2024 07 22

My Story Living with Lupus

Shared 1 year ago

216 views

1:11

Lupus and Gastroparesis: The Hidden Connection 2024 07 08

My Story Living with Lupus

Shared 1 year ago

146 views

7:28

Understanding: Lupus Impact on Black Men 2024 07 08

My Story Living with Lupus

Shared 1 year ago

2.3K views

2:21

Episode 1 My Story The Beginning Susan Hendrix

My Story Living with Lupus

Shared 3 years ago

23 views

21:31

Experimental Treatment Offers New Hope Against Lupus

My Story Living with Lupus

Shared 3 years ago

11 views