My Story Living with Lupus
Hello, I'm Susan L. Hendrix the creator of My Story Living With Lupus Podcast. I have lived with the signs and symptoms of SLE since the age of 5, but was not clinically diagnosed until 2004. You will hear about my journey the up's and down's that I go through with Lupus and it's 39 plus over lapping conditions that it has caused. You will also hear from other Lupus warrior's along with others who are not only surviving but thriving.
You will find informative and helpful information regarding this chronic illness that affects more than 5 million world wide, it is most prevalent in women of color and there is no cure. So your cup of coffee, cup of tea and if your listening late at night I truly appreciate you so grab your favorite glass of wine and join us.
Disclaimer: My Story Living with Lupus Podcast is officially Trade Marked All Rights Reserved. The Views and Opinions expressed on My Story Living with Lupus Podcast represents each persons individual experience.
My Story Living with Lupus
💜 Community Update – From My Heart to Yours 💜
Over the past four months, I’ve been on a journey of recovery following heart surgery. It hasn’t been easy, but it has been filled with reflection, gratitude, and strength I didn’t even know I had.
As we enter this holiday season, I want to wish each and every one of you a healthy, peaceful, and happy holiday. Your support, encouragement, kind words, and continued presence here on My Story Living With Lupus have meant more to me than I can ever put into words. You’ve reminded me that I’m never walking this journey alone.
Thank you for standing by me, for believing in this space, and for being part of this community that uplifts, educates, and empowers one another. 💜
I’m taking this time to fully heal — and I promise you, I’ll be back stronger than ever in 2026. Until then, know how deeply grateful I am for each and every one of you.
With love, strength, and gratitude,
Susan 💜
1 week ago | [YT] | 1
View 0 replies
My Story Living with Lupus
There are those who may complain about not having the perfect pair of shoes — but remember, there is someone out there with no feet to place a shoe on. You’re Blessed.
Some may complain about the house they live in — but remember, there are many who have no roof over their head. You’re Blessed.
Others may wake up grumbling that they have nothing to wear — yet, if you look in their closet, it’s filled with clothes. Meanwhile, there are those lying in funeral homes being dressed for the very last time — and they haven’t uttered a single complaint.
There’s a child somewhere putting on clothes with holes in them, yet they still smile.
There’s a homeless individual who doesn’t have a closet to open or choices to make.
You’re Blessed.
So, if you were favored to wake up this morning and didn’t complain about what you don’t have — believe me, you are truly Blessed.
Let this message sink into your spirit, and every time you feel tempted to complain, I pray you remember just how Blessed you are.
1 month ago | [YT] | 0
View 0 replies
My Story Living with Lupus
I’m Back! Updates & What’s Coming Soon 💜
Hi friends,
I’ve been away for a little while, and I want to share why. I recently had heart surgery, which meant I needed time to rest, recover, and focus on my health. 💖 It’s been a journey, but I’m happy to say I’m feeling stronger every day!
I’m so grateful for your patience and support, and I can’t wait to get back to creating content for My Story Living With Lupus. 🎥✨ I have some new videos in the works, covering health tips, support resources, and personal stories, so stay tuned — there’s a lot coming your way!
Thank you for being part of this community. Your encouragement means the world to me. 💜
#LupusAwareness #ChronicIllnessCommunity #RecoveryJourney #MyStoryLivingWithLupus
2 months ago | [YT] | 0
View 0 replies
My Story Living with Lupus
Holding onto your faith while dealing with a chronic illness can be both a challenge and a source of strength. In moments of pain and uncertainty, faith can provide hope, resilience, and a sense of purpose. It reminds us that we are not alone in our struggles and that there is a greater plan beyond our suffering. Whether through prayer, meditation, or leaning on a supportive faith community, staying connected to your beliefs can bring comfort and inner peace. While the journey may be difficult, faith can serve as an anchor, helping you navigate each day with courage and grace. Keep believing, keep hoping, and know that your strength is inspiring to others.
8 months ago | [YT] | 1
View 0 replies
My Story Living with Lupus
Storms Are Not Disruptions, They're Divine Redirections
11 months ago | [YT] | 2
View 0 replies
My Story Living with Lupus
Life is full of challenges, moments when the road ahead seems too steep, too hard, too long... But it's in these moments of doubt and despair that true strength is born. Every setback is a setup for a comeback. Every obstacle is an opportunity to rise, to grow, to become stronger than you ever imagined. Never give up on your dreams, your goals, your purpose. The road may be tough, but the destination is worth every step. Your journey to greatness begins with the decision to keep going, no matter what. You are stronger than you think. Keep moving forward.
1 year ago | [YT] | 2
View 0 replies