The Children’s Tumor Foundation (CTF) is the drug discovery engine for NF. Everything we do is to bring treatments to patients as we work toward a cure. By connecting patients, doctors, scientists, and pharma, we drive treatments, advance care, and deliver results for millions affected by neurofibromatosis or schwannomatosis, collectively referred to as NF. Our patient-first approach accelerates drug development and brings life-changing therapies to patients faster, driven by our mission to end NF.
NF refers to a group of genetic conditions that cause tumors to grow on nerves throughout the body. NF affects 1 in 2,000 births and may lead to blindness, deafness, bone abnormalities, disfigurement, learning disabilities, disabling pain, or cancer. NF affects all races, ethnic groups, and genders equally. NF includes neurofibromatosis type 1 (NF1) and all types of schwannomatosis (SWN), including NF2-related schwannomatosis (NF2-SWN), formerly called neurofibromatosis type 2 (NF2).
Childrens Tumor Foundation
Children's Tumor Foundation just launched a new monthly webinar series for patients covering topics related to neurofibromatosis and schwannomatosis! Please subscribe (and click the bell) to be notified when we share this impactful content. youtube.com/@childrenstumor?sub_confirmation=1
1 year ago | [YT] | 3
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Childrens Tumor Foundation
Please view this beautiful, personal video from our National Ambassador, Lilly Ann Brooks. You can submit your own video for CTF's Make NF Visible Channel at ctf.org/myvideo.
4 years ago | [YT] | 2
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Childrens Tumor Foundation
On May 17th, 2020, World NF Awareness Day, we're coming together to make sure the world knows about neurofibromatosis! Tune in right here at 7:00 p.m. EST, when we'll be joined by well-known actors, musicians, athletes, comedians, chefs, magicians, celebrities, and NF Heroes, all combining forces for this important cause: TO MAKE NF VISIBLE!
Hosted by Actor/Producer Jonathan Sadowski, this Zoomathan event to benefit the Children’s Tumor Foundation will be live streamed on Facebook and Youtube.
Keep following us as we share the big names that will be joining us to Make NF Visible! #EndNF
Visit ctf.org/get-involved/home-is-where-the-heart-is-zoomathon to learn more.
5 years ago (edited) | [YT] | 3
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Childrens Tumor Foundation
On May 17th, 2020, World NF Awareness Day, we're coming together to make sure the world knows about neurofibromatosis! Tune in right here at 7:00 p.m. EST, when we'll be joined by well-known actors, musicians, athletes, comedians, chefs, magicians, celebrities, and NF Heroes, all combining forces for this important cause: TO MAKE NF VISIBLE!
Hosted by Actor/Producer Jonathan Sadowski, this Zoomathan event to benefit the Children’s Tumor Foundation will be live streamed on Facebook and Youtube.
Keep following us as we share the big names that will be joining us to Make NF Visible! #EndNF
Visit ctf.org/get-involved/home-is-where-the-heart-is-zoomathon to learn more.
5 years ago (edited) | [YT] | 5
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Childrens Tumor Foundation
The Children's Tumor Foundation is committed to offering captions to all of our YouTube videos. We hope that you'll take advantage of our captions by clicking the CC button. You can also view our videos with captions in any language!
6 years ago | [YT] | 4
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Childrens Tumor Foundation
Thank you for helping us get to 1,000 subscribers! We are excited to bring more and more video content about neurofibromatosis to CTF's YouTube channel. Let us know if there is anything in particular you'd like to see. #EndNF
7 years ago (edited) | [YT] | 3
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