Childrens Tumor Foundation - Invidious

Childrens Tumor Foundation

The Children’s Tumor Foundation (CTF) is the drug discovery engine for NF. Everything we do is to bring treatments to patients as we work toward a cure. By connecting patients, doctors, scientists, and pharma, we drive treatments, advance care, and deliver results for millions affected by neurofibromatosis or schwannomatosis, collectively referred to as NF. Our patient-first approach accelerates drug development and brings life-changing therapies to patients faster, driven by our mission to end NF.

NF refers to a group of genetic conditions that cause tumors to grow on nerves throughout the body. NF affects 1 in 2,000 births and may lead to blindness, deafness, bone abnormalities, disfigurement, learning disabilities, disabling pain, or cancer. NF affects all races, ethnic groups, and genders equally. NF includes neurofibromatosis type 1 (NF1) and all types of schwannomatosis (SWN), including NF2-related schwannomatosis (NF2-SWN), formerly called neurofibromatosis type 2 (NF2).

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21:10

NF Summit 2026: INTUITT-NF2 Clinical Trial, an innovative approach to testing NF2-SWN medications

Childrens Tumor Foundation

Shared 1 week ago

39 views

26:01

NF Summit 2026: Cutaneous Neurofibromas - Treatment and Research

Childrens Tumor Foundation

Shared 1 week ago

120 views

23:32

NF Summit 2026: Partners in Discovery - How Patients Help Advance NF2-SWN Research

Childrens Tumor Foundation

Shared 1 week ago

22 views

18:11

NF Summit 2026: Protecting Hearing While Controlling NF2-Related Vestibular Schwannoma Growth

Childrens Tumor Foundation

Shared 1 week ago

32 views

27:38

NF Summit 2026: Genetics in NF & Schwannomatosis

Childrens Tumor Foundation

Shared 1 week ago

60 views

1:03:21

NF Summit 2026: Living with NF2-related Schwannomatosis

Childrens Tumor Foundation

Shared 1 week ago

24 views

21:43

NF Summit 2026: STARFISH Clinical Trial for Pain Relief in Non-NF2-Related Schwannomatosis

Childrens Tumor Foundation

Shared 1 week ago

10 views

1:02:53

NF Summit 2026: Balancing Hope and Reality: Making Sense of Early NF Research

Childrens Tumor Foundation

Shared 1 week ago

32 views

10:36

NF Summit 2026: Community Voice, Hannah Kim, Patient Representative

Childrens Tumor Foundation

Shared 1 week ago

16 views

6:13

NF Summit 2026: Community Voice - Amanda Rose, Patient Representative

Childrens Tumor Foundation

Shared 1 week ago

26 views

29:13

NF Summit 2026: Clinical Care for People with Schwannomatosis

Childrens Tumor Foundation

Shared 1 week ago

40 views

59:55

NF Summit 2026: Dating, Disclosure & Desire - Conversations on Relationships while Living with NF

Childrens Tumor Foundation

Shared 1 week ago

31 views

46:41

NF Summit 2026: Protecting Vision in NF1: What Families Need to Know About Optic Pathway Tumors

Childrens Tumor Foundation

Shared 1 week ago

30 views

29:57

NF Summit 2026: Building a Family with NF - Contraception, Genetic Options, and Pregnancy

Childrens Tumor Foundation

Shared 1 week ago

47 views

6:51

NF Summit 2026: How CTF is driving NF2-SWN Research Forward

Childrens Tumor Foundation

Shared 1 week ago

18 views

24:17

NF Summit 2026: Beyond Optic Pathway Glioma: Updates in Brain Tumor Care and Research

Childrens Tumor Foundation

Shared 1 week ago

28 views

1:25:21

NF Summit 2026: Keynote - Where There’s a Will, There’s a Way

Childrens Tumor Foundation

Shared 1 week ago

62 views

31:12

NF Summit 2026: Our Shared Mission - Sustaining the Momentum in NF2-SWN Research

Childrens Tumor Foundation

Shared 1 week ago

11 views

19:19

NF Summit 2026: Partnering for Progress - CTF-Funded Research and the Road to NF1 Treatments

Childrens Tumor Foundation

Shared 1 week ago

18 views

6:14

NF Summit 2026: Community Voice - Rebecca Bialecki, PhD, Patient Representative

Childrens Tumor Foundation

Shared 1 week ago

31 views

31:25

NF Summit 2026: NF and SWN Genetics Expert Panel Q&A

Childrens Tumor Foundation

Shared 1 week ago

28 views

18:52

NF Summit 2026: A More Comprehensive and Sensitive Measure of Quality of Life in NF2 Clinical Trials

Childrens Tumor Foundation

Shared 1 week ago

15 views

1:00:23

NF Summit 2026: We Are All Advocates - Catalyzing Experiences into Advocacy

Childrens Tumor Foundation

Shared 1 week ago

16 views

2:01:02

NF Summit 2026: Caring for Common Health Issues in NF1

Childrens Tumor Foundation

Shared 1 week ago

70 views

50:53

NF Summit 2026: What I Wish I Knew Then - Perspectives on Moving to Adult Care

Childrens Tumor Foundation

Shared 1 week ago

50 views

32:54

NF Summit 2026: The Cognitive and Behavioral Landscape of NF1

Childrens Tumor Foundation

Shared 1 week ago

21 views

42:34

NF Summit 2026: Navigating School Advocacy and Special Education, with Q&A from an Expert Panel

Childrens Tumor Foundation

Shared 1 week ago

11 views

28:58

NF Summit 2026: Understanding Neuropsychological Evaluations: Guiding Care and School Supports

Childrens Tumor Foundation

Shared 1 week ago

8 views

26:35

NF Summit 2026: Plexiform Neurofibromas - Management & Treatment + Research

Childrens Tumor Foundation

Shared 1 week ago

66 views

13:22

NF Summit 2026: Community Voice: Murray McCartan, No Moment Like Now.

Childrens Tumor Foundation

Shared 1 week ago

6 views

47:21

NF Summit 2026: Working with NF - ADA Rights, Accommodations, and Professional Self-Advocacy

Childrens Tumor Foundation

Shared 1 week ago

43 views

19:34

NF Summit 2026: From Spider Venom to Hope - Developing a Treatment for Schwannomatosis-related Pain

Childrens Tumor Foundation

Shared 1 week ago

16 views

38:53

NF Summit 2026: Make NF Visible Awards

Childrens Tumor Foundation

Shared 1 week ago

78 views

9:04

I Know A Fighter 2026 NF2-SWN Story: "I Won't Give Up - Pujitha"

Childrens Tumor Foundation

Shared 1 month ago

49 views

1:44

Michael J. Fisher, MD, 2026 Von Recklinghausen Awardee

Childrens Tumor Foundation

Shared 1 month ago

83 views

2:24

Building Real Progress for NF2-SWN

Childrens Tumor Foundation

Shared 2 months ago

94 views

0:34

Let's End NF2-SWN

Childrens Tumor Foundation

Shared 2 months ago

57 views

1:08:34

NF2 Town Hall: All in for NF2

Childrens Tumor Foundation

Shared 2 months ago

264 views

1:26

Does having NF2-Related Schwannomatosis mean that I Will Lose my Hearing? | Big Questions About NF

Childrens Tumor Foundation

Shared 2 months ago

60 views

59:49

2026 NF Knowledge Series: From Isolation to Empowerment: Building Hope, Resilience & Community in NF

Childrens Tumor Foundation

Shared 2 months ago

143 views

1:52

2026 Cupid's Undie Run Recap

Childrens Tumor Foundation

Shared 2 months ago

60 views

10:54

Wild Grass of Hope - Neurofibromatosis Shenzhen Care Center (NFCC)

Childrens Tumor Foundation

Shared 2 months ago

150 views

0:33

Take Action this NF Awareness Month with CTF Ambassador Alexandra Norton

Childrens Tumor Foundation

Shared 3 months ago

47 views

59:42

2026 NF Knowledge Series: Segmental and Mosaic NF

Childrens Tumor Foundation

Shared 3 months ago

270 views

54:20

2026 NF Knowledge Series: Discovering Possibilities for NF1 Plexiform Neurofibromas in Adults

Childrens Tumor Foundation

Shared 3 months ago

497 views

1:11

What is Mosaic NF2-Related Schwannomatosis? | Big Questions About NF

Childrens Tumor Foundation

Shared 4 months ago

94 views

42:55

2026 NF Knowledge Series: Launching the New NF Registry

Childrens Tumor Foundation

Shared 5 months ago

378 views

1:17

How Typical is Autism in NF1? | Big Questions About NF

Childrens Tumor Foundation

Shared 5 months ago

361 views

1:41

How did I get NF2-Related Schwannomatosis? | Big Questions About NF

Childrens Tumor Foundation

Shared 6 months ago

170 views

0:31

Join Cupid's Undie Run with CTF Ambassador Alexandra Norton

Childrens Tumor Foundation

Shared 6 months ago

45 views

0:31

Donate Today to #EndNF

Childrens Tumor Foundation

Shared 7 months ago

57 views

1:09

Will my NF2-SWN Vestibular Schwannomas lead to Facial Paralysis? | Big Questions About NF

Childrens Tumor Foundation

Shared 7 months ago

91 views

0:42

Ending NF: A Call to Action from Children’s Tumor Foundation CEO Annette Bakker

Childrens Tumor Foundation

Shared 7 months ago

135 views

1:08

Jake’s Story: Living With NF2-SWN

Childrens Tumor Foundation

Shared 7 months ago

127 views

0:30

Help End NF: A Call to Action from Alexandra Norton

Childrens Tumor Foundation

Shared 7 months ago

94 views

0:18

Samantha: Because of You, I Can Hug My Family Again

Childrens Tumor Foundation

Shared 8 months ago

62 views

2:22

What is NF1? | Big Questions About NF

Childrens Tumor Foundation

Shared 8 months ago

230 views

2:38

Colin Courageous Foundation: CTF Humanitarian Award

Childrens Tumor Foundation

Shared 8 months ago

66 views

2:55

Alexandra Norton, CTF 2026 National Ambassador

Childrens Tumor Foundation

Shared 8 months ago

235 views

59:43

NF Knowledge Series: Understanding Café au Lait Spots Beyond NF1 & Legius Syndrome

Childrens Tumor Foundation

Shared 8 months ago

941 views