Childrens Tumor Foundation - Invidious

Childrens Tumor Foundation

The Children’s Tumor Foundation (CTF) is the drug discovery engine for NF. Everything we do is to bring treatments to patients as we work toward a cure. By connecting patients, doctors, scientists, and pharma, we drive treatments, advance care, and deliver results for millions affected by neurofibromatosis or schwannomatosis, collectively referred to as NF. Our patient-first approach accelerates drug development and brings life-changing therapies to patients faster, driven by our mission to end NF.

NF refers to a group of genetic conditions that cause tumors to grow on nerves throughout the body. NF affects 1 in 2,000 births and may lead to blindness, deafness, bone abnormalities, disfigurement, learning disabilities, disabling pain, or cancer. NF affects all races, ethnic groups, and genders equally. NF includes neurofibromatosis type 1 (NF1) and all types of schwannomatosis (SWN), including NF2-related schwannomatosis (NF2-SWN), formerly called neurofibromatosis type 2 (NF2).

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42:55

2026 NF Knowledge Series: Launching the New NF Registry

Childrens Tumor Foundation

Shared 1 week ago

140 views

1:17

How Typical is Autism in NF1? | Big Questions About NF

Childrens Tumor Foundation

Shared 3 weeks ago

238 views

1:41

How did I get NF2-Related Schwannomatosis? | Big Questions About NF

Childrens Tumor Foundation

Shared 4 weeks ago

106 views

0:31

Join Cupid's Undie Run with CTF Ambassador Alexandra Norton

Childrens Tumor Foundation

Shared 4 weeks ago

32 views

0:31

Donate Today to #EndNF

Childrens Tumor Foundation

Shared 1 month ago

43 views

1:09

Will my NF2-SWN Vestibular Schwannomas lead to Facial Paralysis? | Big Questions About NF

Childrens Tumor Foundation

Shared 1 month ago

77 views

0:42

Ending NF: A Call to Action from Children’s Tumor Foundation CEO Annette Bakker

Childrens Tumor Foundation

Shared 1 month ago

73 views

1:08

Jake’s Story: Living With NF2-SWN

Childrens Tumor Foundation

Shared 3 months ago

100 views

0:30

Help End NF: A Call to Action from Alexandra Norton

Childrens Tumor Foundation

Shared 3 months ago

57 views

0:18

Samantha: Because of You, I Can Hug My Family Again

Childrens Tumor Foundation

Shared 3 months ago

52 views

2:22

What is NF1? | Big Questions About NF

Childrens Tumor Foundation

Shared 3 months ago

161 views

2:38

Colin Courageous Foundation: CTF Humanitarian Award

Childrens Tumor Foundation

Shared 3 months ago

64 views

2:55

Alexandra Norton, CTF 2026 National Ambassador

Childrens Tumor Foundation

Shared 3 months ago

159 views

59:43

NF Knowledge Series: Understanding Café au Lait Spots: Beyond NF1

Childrens Tumor Foundation

Shared 3 months ago

449 views

0:58

Meet Alexandra Norton, the Children’s Tumor Foundation’s 2026 National Ambassador

Childrens Tumor Foundation

Shared 4 months ago

121 views

2:00

Penny's Flight Foundation: Taking Flight and Ending NF

Childrens Tumor Foundation

Shared 4 months ago

70 views

1:17

Do These Birthmarks Mean that I have NF1? | Big Questions About NF

Childrens Tumor Foundation

Shared 4 months ago

103 views

55:30

NF Knowledge Series: Navigating The Mental Health Landscape for People with NF

Childrens Tumor Foundation

Shared 4 months ago

320 views

1:27

Richard Soll, WuXi AppTec: Children's Tumor Foundation Cloud Carrier Award

Childrens Tumor Foundation

Shared 5 months ago

78 views

1:35

Colin Courageous Foundation: Fueling Impact for NF

Childrens Tumor Foundation

Shared 5 months ago

108 views

1:09

How did my Child get Neurofibromatosis Type 1? | Big Questions About NF

Childrens Tumor Foundation

Shared 5 months ago

216 views

0:59

What is the Most Common Symptom of Schwannomatosis? | Big Questions About NF

Childrens Tumor Foundation

Shared 6 months ago

143 views

54:39

NF Knowledge Series: New Pathways for Plexiform Neurofibromas

Childrens Tumor Foundation

Shared 6 months ago

471 views

1:03

NF Summit 2025 Recap

Childrens Tumor Foundation

Shared 7 months ago

239 views

1:01

NF Conference 2025 Recap

Childrens Tumor Foundation

Shared 7 months ago

459 views

37:31

The Impact of a Collective Approach - The NF Collective

Childrens Tumor Foundation

Shared 7 months ago

61 views

38:21

The Importance of Mental Health and Resiliency in NF

Childrens Tumor Foundation

Shared 7 months ago

79 views

49:18

NF Moms Talk: What I Wish I Knew Then

Childrens Tumor Foundation

Shared 7 months ago

158 views

54:04

How to Tell a Child about an NF1 Diagnosis

Childrens Tumor Foundation

Shared 7 months ago

145 views

53:57

Ophthalmic Care for Children with NF1 and NF2-Related Schwannomatosis

Childrens Tumor Foundation

Shared 7 months ago

120 views

56:19

Developmental, Cognitive, and Social-Emotional Challenges in NF1 from Childhood to Young Adulthood

Childrens Tumor Foundation

Shared 7 months ago

90 views

57:53

Independence, Empowerment, and Transitions: Navigating Adulthood with NF

Childrens Tumor Foundation

Shared 7 months ago

68 views

56:40

Connecting in New Ways: How Technology and AI Empower Communication in Neurofibromatosis

Childrens Tumor Foundation

Shared 7 months ago

33 views

59:41

Peer to Peer: Foundational Fundraising

Childrens Tumor Foundation

Shared 7 months ago

25 views

56:05

Inside Out- How Advanced Imaging is Changing Neurofibromatosis Management

Childrens Tumor Foundation

Shared 7 months ago

108 views

1:01:03

Keys to Wellness: From Pain to Sleep

Childrens Tumor Foundation

Shared 7 months ago

43 views

53:41

Peer to Peer: Relationship ROI

Childrens Tumor Foundation

Shared 7 months ago

25 views

59:00

NF2-related Schwannomatosis Unfiltered: Facing Deafness, Balance, and More

Childrens Tumor Foundation

Shared 7 months ago

100 views

53:04

Fueling Momentum - Your Role in Advancing NF Research Now

Childrens Tumor Foundation

Shared 7 months ago

53 views

1:11:06

Keynote Panel: Stay Active, Stay Vocal, Stay United - How the NF Community Drives Progress Together

Childrens Tumor Foundation

Shared 7 months ago

65 views

1:03:23

From Experience to Impact: Navigating NF Clinical Trials

Childrens Tumor Foundation

Shared 7 months ago

44 views

56:43

NF1 and Plexiform Neurofibroma: Updates in Treatment and Clinical Trials

Childrens Tumor Foundation

Shared 7 months ago

467 views

42:52

NF Summit 2025: Make NF Visible Awards & Closing Session

Childrens Tumor Foundation

Shared 7 months ago

42 views

47:52

PCORI and Patient-Centered Research in NF

Childrens Tumor Foundation

Shared 7 months ago

26 views

1:02:05

Beyond Sound- Multi-sensory Alerts for a Safer Home

Childrens Tumor Foundation

Shared 7 months ago

19 views

1:02

What are the Types of Tumors Associated with NF2-Related Schwannomatosis? | Big Questions About NF

Childrens Tumor Foundation

Shared 7 months ago

140 views

57:34

NF Knowledge Series: Understanding AI and Its Impact within Neurofibromatosis

Childrens Tumor Foundation

Shared 7 months ago

326 views

4:25

Dr. Stephanie Bouley’s Journey to Advance NF1 Research

Childrens Tumor Foundation

Shared 8 months ago

119 views

1:48

What is NF2-Related Schwannomatosis? | Big Questions About NF

Childrens Tumor Foundation

Shared 8 months ago

163 views

1:45

Two Leaders Reflect on the 2025 Federal Funding Cuts

Childrens Tumor Foundation

Shared 9 months ago

87 views

3:32

Moxie and Sparx Explain Neurofibromatosis Type 1 (NF1)

Childrens Tumor Foundation

Shared 9 months ago

312 views

1:45

What is Schwannomatosis? | Big Questions About NF

Childrens Tumor Foundation

Shared 9 months ago

358 views

46:20

NF Knowledge Series: Breaking Barriers in NF2-Related Schwannomatosis Research

Childrens Tumor Foundation

Shared 9 months ago

386 views

1:10

What is the Hallmark Manifestation of NF2-related Schwannomatosis? | Big Questions About NF

Childrens Tumor Foundation

Shared 9 months ago

131 views

1:00:23

NF Knowledge Series: Genetics & Reproductive Options in NF & Schwannomatosis

Childrens Tumor Foundation

Shared 10 months ago

553 views

0:53

What is NF? | Big Questions about Neurofibromatosis & Schwannomatosis

Childrens Tumor Foundation

Shared 10 months ago

524 views

40:10

CTF CEO Annette Bakker Moderates Panel at World Orphan Drug Congress 2025

Childrens Tumor Foundation

Shared 10 months ago

238 views

58:35

2025 NF Knowledge Series: Hearing Preservation & Rehabilitation in NF2-Related Schwannomatosis

Childrens Tumor Foundation

Shared 10 months ago

537 views

2:32:01

Patient Day at the Global NF Conference: Morning Session

Childrens Tumor Foundation

Shared 11 months ago

159 views

1:16:08

Patient Day at the Global NF Conference: Afternoon Session

Childrens Tumor Foundation

Shared 11 months ago

100 views