Rare Disease Day 2026 | SLC6A1 Awareness & Voices of Hope

Dave’s Story: Fighting McArdle’s with Data, Not Despair | DeHealth Patient-Led Revolution

Holding Their Hand Through the Needle: The Reality of Blood Tests in Rare Disease” 💙

A Conversation That Could Save a Life | Wilson Disease Story

help shine a light on rare conditions #RareDisease #NF1 #Disability #homocystinuria

Most people have never heard of this rare condition #Homocystinuria

Not Invisible

🚨 Rare Disease Alert: Meet 1 of Less Than 1,000 Americans With This Hidden Condition! 🇺🇸

Behind the Mystery

The Reality of Managing Prescriptions & Low-Protein Diets for Rare Diseases #RareDisease #HCU

Voices of the Rare: The Ikris Pharma Impact

Unlocking Hope: A Conversation with Dr. R.K. Jain on Rare Disease Breakthroughs

The Lost Enzyme Project and Channel 12 News

Pseudomyxoma Survivor - together we're stronger

Audrey Hepburn’s son's RARE family photos and the CANCER that took her life

Thrive Conference Series: Advocating with Evidence: Using Patient Registries of Today and the Future

"Shining Light on the Shadows: Uniting Against Rare Diseases"

Exclusive Teaser Alert! A Sneak Peek into Rare Disease Breakthroughs!

Rare Disease: State of the Art Diagnostics by Dr. Stephen Kingsmore

The Lost Enzyme Project and Montana News (Short)

Thrive Conference Series: Historical Perspective of Pyruvate Kinase Deficiency

Diaphragmatic Breathing exercise produced for the PMP and appendix cancer community

Thrive Conference Series: Achieving a Better Quality of Life: PK Deficiency Community Priorities

Rare Disease Day @ IndoUSrare