foundation for ichthyosis - Invidious

foundation for ichthyosis

The Foundation for Ichthyosis & Related Skin Types, Inc. (FIRST) is a national nonprofit foundation. Our mission is to educate, inspire, and connect those touched by ichthyosis and related disorders through emotional support, information, advocacy, and research funding for better treatments and eventual cures.

FIRST provides information about ichthyosis through our website, www.firstskinfoundation.org, via printed publications, our quarterly newsletter, and through our lobbying and advocacy efforts. Our signature event, the National Family Conference, provides attending families an opportunity to forge unforgettable connections with each other and to consult with leading medical experts. FIRST also hosts smaller one-day regional meetings.

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20:01

15 min Somatic Breathing With Sacha

foundation for ichthyosis

Shared 3 months ago

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16:10

Relaxation & Breathing

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Shared 3 months ago

19 views

30:25

Somatic Yoga - 30 Min with Sacha

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Shared 3 months ago

89 views

2:08

R&D Day at BioCryst Interview - Caroline

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Shared 5 months ago

97 views

2:07

R&D Day at BioCryst Interview - Betty Ann

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Shared 5 months ago

43 views

35:13

Tips for Home Made Cream by Catherine Torres

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Shared 10 months ago

237 views

51:50

2024 National Conference - Power of Self Care

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Shared 10 months ago

73 views

55:46

2024 FIRST National Conference - Participating in Clinical Trials

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Shared 11 months ago

156 views

49:43

2024 FIRST National Conference Dealing with Difficult People

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Shared 11 months ago

59 views

48:05

2024 FIRST National Conference - Ichthyosis Research Update

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Shared 11 months ago

226 views

27:50

2024 FIRST National Conference - Dakota Fisher-Vance - Self Advocacy - Cultivating Resilience

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Shared 11 months ago

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40:33

2024 FIRST National Conference - Lowell Wright

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Shared 11 months ago

68 views

47:33

2024 FIRST National Conference -Alex Howard - Being Your Best Advocate

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Shared 11 months ago

66 views

32:27

2024 FIRST National Conference - Pierre Brault - The Influence that Ichthyosis Has on My Life

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Shared 11 months ago

238 views

26:53

Abigail- Netherton Syndrome and Mental Health

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Shared 1 year ago

364 views

55:11

Barre Class

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Shared 1 year ago

167 views

1:10

Portia's Skincare Regimen

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Shared 1 year ago

122 views

25:42

FIRST to Know - Navigating Ichthyosis & Mental Health During Winter

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Shared 1 year ago

197 views

0:05

Grand Canyon Expedition Information Session

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Shared 1 year ago

62 views

1:23:44

Holiday Gift Ideas

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Shared 1 year ago

46 views

1:08:47

Timber Ascend Trial Zoom Info Session 11 28 23

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Shared 1 year ago

311 views

2:40

Announcing our new Community Yoga For All!

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Shared 1 year ago

62 views

11:18

Yoga for Ichthyosis Community: Cooling & Calming Breath

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Shared 1 year ago

72 views

0:38

Ichthyosis and covering your head

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Shared 1 year ago

125 views

1:00

Treating Strangers with Grace

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Shared 1 year ago

92 views

54:12

Dr Leonard Milstone Retinoids and DISH

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Shared 1 year ago

114 views

3:29

Dermaplaning - is it for you?

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Shared 1 year ago

223 views

1:29

3 Ways to Make Travel Easier on Your Skin

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Shared 1 year ago

123 views

0:56

Rylee Iott explains how a UFIRST Scholarship helped her

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Shared 1 year ago

124 views

1:32

Treasure White explains how a UFIRST Scholarship helped her

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Shared 1 year ago

123 views

26:40

Beiersdorf Derma day 2023-IAM23 - Sacha Schenker 2

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Shared 2 years ago

56 views

35:55

Beiersdorf Derma day 2023-IAM23 - Hunter Steinitz 2

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Shared 2 years ago

161 views

20:39

Beiersdorf Derma day 2023-IAM23 - Christine Wassel

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Shared 2 years ago

46 views

13:31

Beiersdorf Derma day 2023-IAM23 Andrea Rustad

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Shared 2 years ago

74 views

0:48

#IAM23 - Cheryl Bayart, MD, MPH

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Shared 2 years ago

131 views

0:36

#IAM23 Hikers at Grand Canyon Trailhead

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Shared 2 years ago

28 views

0:53

#IAM23 - Jackie Barrett

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Shared 2 years ago

54 views

1:30

#IAM23 - Sean Cina

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Shared 2 years ago

54 views

0:25

#IAM23 - Rylee Iott

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Shared 2 years ago

16 views

55:18

Yoga for Ichthyosis - Joint Freeing Series - Gentle Yoga Class 3

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Shared 2 years ago

60 views

52:37

Yoga for Ichthyosis - Mindful Movement Class 3

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Shared 2 years ago

99 views

58:45

Yoga for Ichthyosis - Joint Freeing Series - Gentle Yoga Class 2

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Shared 2 years ago

50 views

53:07

Yoga for Ichthyosis - Mindful Movement Class 2

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Shared 2 years ago

66 views

41:26

Netherton Syndrome Research Info Session from 5 8 23

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Shared 2 years ago

194 views

44:01

FIRST Connects Social Media

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Shared 2 years ago

49 views

54:37

Yoga for Ichthyosis - Mindful Movement Class 1

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Shared 2 years ago

191 views

1:05:16

FIRST Connects: Getting Ready for College

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Shared 2 years ago

88 views

51:59

Yoga for Ichthyosis - Joint Freeing Series - Gentle Yoga Class 1

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Shared 2 years ago

152 views

50:18

What's New in Ichthyosis Research - 2022 FIRST National Conference

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Shared 2 years ago

1.4K views

1:48

Two FIRST Members Discuss the Importance and Ease of Participating in Research Studies

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Shared 2 years ago

320 views

47:20

Grand Canyon Rim to Rim to Rim Ichthyosis Fundraiser

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Shared 2 years ago

91 views

41:20

Keynote: Shawn Harper - FIRST National Conference 2022

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Shared 2 years ago

234 views

37:29

Keynote: Andrew Buerger - FIRST National Conference 2022

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Shared 2 years ago

75 views

41:05

Panel: Participating In Clinical Trials - FIRST National Conference 2022

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Shared 2 years ago

203 views

53:53

Ichthyosis & FIRST: Common Themes In my Life of Investigation

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Shared 2 years ago

277 views

17:42

Portia Cina - FIRST National Conference 2022

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Shared 2 years ago

113 views

9:57

2018 -2022 Volunteer Awards - FIRST National Conference 2022

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Shared 2 years ago

51 views

15:01

Talent Show - FIRST National Conference 2022

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Shared 2 years ago

71 views

4:20

Board President Announcement - FIRST National Conference 2022

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Shared 2 years ago

45 views

30:29

Keynote: Hunter Steinitz - FIRST National Conference 2022

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Shared 2 years ago

706 views