Scleroderma or systemic sclerosis, is a chronic connective tissue condition. It is generally classified as one of the autoimmune rheumatic conditions. One of the common symptoms is the thickening or hardening of the skin. It comes from the Greek: sclero = hard, derma = skin.
Scleroderma Australia has been incorporated since 2005 to facilitate a national representative voice in supporting our scleroderma community across Australia. Delegates from the states make up our governing Committee.
The purpose of our association is to:
* Coordinate and promote scleroderma awareness across Australia
* Increase community support and engagement for people with scleroderma and their families
* Advocate for people with scleroderma for improved patient outcomes
* Coordinate funding for scleroderma research across Australia
* Support state associations to provide successful and sustainable outcomes.
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Living with Scleroderma: Amanda Lawrie-Jones on Nurse Funding & Advocacy |World Scleroderma Day 2025
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