SMA It's Not Too Late - Invidious

SMA It's Not Too Late

Spinal Muscular Atrophy is a beast to deal with. It's terrifying to get the diagnosis and then it's a whole new lifestyle you are thrown into. Some are fortunate to have access to one of the SMA treatments being Spinraza® (Nusinersen), Zolgensma (onasemnogene abeparvovec-xioi), and Evrysdi™ (Risdiplam). Many children don't have access to these treatments but the question of each parent is the same, "What does the future hold for my child?" I can't predict the future, but I have found life-changing solutions that create a hope in an unknown future for SMA persons. I am sharing these solutions with you. Spinal Muscular Atrophy does not have to be scary. It doesn't matter, SMA type 1, type 2, type 3, or type 4 the information in this channel will be valuable to you. This goes beyond therapy options for helping a child with SMA move, these are alternative solutions that can be done with traditional therapy options like PT & OT.

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34:07

SMA Quality of Life - Movement Structure in the Pelvis for Optimal Movement

SMA It's Not Too Late

Shared 2 years ago

406 views

3:11

SMA Quality of Life - Putting Together and Taking Apart a Zippie Xcape

SMA It's Not Too Late

Shared 2 years ago

165 views

3:17

SMA quality of life - Rolling Over and Spinal Muscular Atrophy and Working on the Absolute Horizon

SMA It's Not Too Late

Shared 2 years ago

305 views

3:53

SMA quality of life - SMA type 1 presenting like and SMA type 0

SMA It's Not Too Late

Shared 2 years ago

114 views

1:38

SMA Quality of Life - 1 Month Old - Home Exercise Bicycle #smababy #lowtone

SMA It's Not Too Late

Shared 2 years ago

159 views

2:34

SMA Quality Of Life - Baby First Sounds - Labored Breathing - 1 Month Old Baby SMA Type 1

SMA It's Not Too Late

Shared 2 years ago

286 views

2:21

SMA Quality of Life - Baby Can't Move in Bouncer - Developmental Warning Sign

SMA It's Not Too Late

Shared 2 years ago

1.7K views

4:39

SMA Quality if Life - Playing Cards - Skull King

SMA It's Not Too Late

Shared 2 years ago

289 views

1:44

SMA quality of life - Gyroscope Functions of the Body and Working With Scoliosis

SMA It's Not Too Late

Shared 2 years ago

41 views

8:41

SMA Quality if Life - SMA and Autism

SMA It's Not Too Late

Shared 2 years ago

42 views

1:49

SMA quality of life - kidwalk without supporting movement structure

SMA It's Not Too Late

Shared 2 years ago

348 views

3:30

SMA Quality if Life and the Absolute Horizon Baby Milestone

SMA It's Not Too Late

Shared 2 years ago

82 views

0:37

SMA quality of life and Swinging

SMA It's Not Too Late

Shared 2 years ago

60 views

5:20

SMA quality of life - going up and down the slide - sma type 1

SMA It's Not Too Late

Shared 2 years ago

103 views

12:02

SMA quality of life - improve subconscious breathing exercise for optimal development - SMA type 1

SMA It's Not Too Late

Shared 2 years ago

185 views

2:35

SMA Quality of Life and Breathing - Spinal Muscular Atrophy Type 1

SMA It's Not Too Late

Shared 2 years ago

71 views

8:41

Going up a steep ramp - HUGE WIN - SMA type 1

SMA It's Not Too Late

Shared 3 years ago

19K views

3:30

53-55 degree curve - compression vs. expansion for reversing scoliosis

SMA It's Not Too Late

Shared 3 years ago

130 views

2:12

Decompressing the spine from the side with a wedge to reverse scoliosis in SMA type 1 (Day 11)

SMA It's Not Too Late

Shared 3 years ago

358 views

1:35

Buckle Fracture and SMA type 1 check up - How it affected the Scoliosis

SMA It's Not Too Late

Shared 3 years ago

120 views

4:50

Using a wedge to get the spine to cross midline - Reverse Scoliosis (Day 10)

SMA It's Not Too Late

Shared 3 years ago

244 views

25:04

Chest percussion therapy, cough assist, breathing exercise - part 2

SMA It's Not Too Late

Shared 3 years ago

4.6K views

29:52

Chest percussion therapy, cough assist, breathing exercises for spinal muscular atrophy part 1 of 3

SMA It's Not Too Late

Shared 3 years ago

2K views

8:36

Critical Home Care for SMA type 1

SMA It's Not Too Late

Shared 3 years ago

412 views

2:46

How to help my SMA child sit - work on Transitional Milestones - Part 2

SMA It's Not Too Late

Shared 3 years ago

366 views

1:14

How to help my SMA child sit - work on Transitional Milestones - Part 1

SMA It's Not Too Late

Shared 3 years ago

234 views

21:02

SMA and Learning How to Eat and Sit Better - reverse scoliosis - day 8 and 9

SMA It's Not Too Late

Shared 3 years ago

211 views

3:46

Asleep on the floor - Reverse Scoliosis - Day 7

SMA It's Not Too Late

Shared 3 years ago

232 views

1:11

Tummy Time and SMA - Reverse Scoliosis (Day 6)

SMA It's Not Too Late

Shared 3 years ago

1.1K views

10:27

Improving Sitting in Spinal Muscular Atrophy - Reversing Scoliosis (Day 5)

SMA It's Not Too Late

Shared 3 years ago

398 views

54:51

No Contractures, No Stretching, No Pain, No Screaming - Spinal Muscular Atrophy

SMA It's Not Too Late

Shared 3 years ago

259 views

13:25

Reverse Scoliosis SMA (Day 5) - I work on balancing the wrist, knee, pelvis, head and chest

SMA It's Not Too Late

Shared 3 years ago

198 views

3:33

Reverse scoliosis and the BiPAP machine - spinal muscular atrophy and tummy time essentials (Day 4)

SMA It's Not Too Late

Shared 3 years ago

340 views

6:17

Goal: Reverse Scoliosis - the left shoulder - spinal muscular atrophy type 1

SMA It's Not Too Late

Shared 3 years ago

131 views

5:30

Kid Walk Gait Trainer Review for Spinal Muscular Atrophy 2/3

SMA It's Not Too Late

Shared 4 years ago

2.6K views

0:53

Kid Walk Gait Trainer for SMA - Spinal Muscular Atrophy 1/3

SMA It's Not Too Late

Shared 4 years ago

4.8K views

1:47

Wisp BiPAP Mask Hack for Children with Spinal Muscular Atrophy

SMA It's Not Too Late

Shared 4 years ago

522 views

2:12

Spinraza Procedure - Exercise for Spine Health

SMA It's Not Too Late

Shared 4 years ago

210 views

4:48

SMA Awareness - Exercise to Work on Standing

SMA It's Not Too Late

Shared 4 years ago

163 views

5:09

SMA Awareness - SMA 1 Movement Potential - Playing in the Dirt

SMA It's Not Too Late

Shared 4 years ago

60 views

2:25

Head Exercise to Relieve Scoliosis in Spinal Muscular Atrophy

SMA It's Not Too Late

Shared 4 years ago

316 views

12:09

Spinal Muscular Atrophy and Scoliosis - Exercises

SMA It's Not Too Late

Shared 4 years ago

383 views

6:51

Why SMA Affects Everyone Differently

SMA It's Not Too Late

Shared 4 years ago

36 views

0:41

How to Avoid Mucas Plugs in SMA (Spinal Muscular Atrophy)

SMA It's Not Too Late

Shared 4 years ago

66 views

8:20

3 Key Steps for Successful Recovery - SMA, Pneumonia, & Rhinovirus (Common Cold)

SMA It's Not Too Late

Shared 4 years ago

385 views