Dan Lier Amyloidosis - The Amyloidosis Whisperer - Invidious

Dan Lier Amyloidosis - The Amyloidosis Whisperer

“I’m Dan Lier, an AL amyloidosis patient, advocate, and the #1 amyloidosis influencer in the U.S. Through my journey, I’ve made it my mission to empower the amyloidosis community with hope, knowledge, and strength. From live outreach sessions to expert interviews and practical resources, I’m here to support patients, families, and caregivers every step of the way.”

You Didn't Choose This Fight, Yet You Can Choose How to Fight It!

I was diagnosed in April of 2017 with AL Cardiac Amyloidosis and went through three types of chemo until April of 2019 (2-years). I have what's called chromosome 11:14 translocation with means the tops of my 11 & 14 chromosomes, switched tops, like people would switch hats. As a result, I'm in a holding pattern with the drug Venetoclax, also known as Venclexta, which is acting as a "maintenance" drug for me until we find a cure to remove the amyloids from my heart.

Positivity is the key to healing on your journey.

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10:45

25 11 18 Summit Summary

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 3 months ago

150 views

0:34

Mindset Matters: Health Tip #2

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 3 months ago

49 views

1:06

Purpura Every Day: My Two-Year Health Battle Unveiled #shorts

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 4 months ago

72 views

1:18

Afraid to Sleep? Speaker's Scary Health Crisis Story! #shorts

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 4 months ago

61 views

1:39

25 9 17 Rosenthal

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 5 months ago

55 views

1:24

25. 9. 1 Dr Kammarti Kimble

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 5 months ago

68 views

2:12

25. 8.26 - Cardiologist Update

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 5 months ago

161 views

2:29

Dan Video ARC AL Amyloidosis Patient

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 5 months ago

100 views

1:37

Outreach Update

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 5 months ago

73 views

1:29

Dealing with the Soreness

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 5 months ago

96 views

1:19

25 8 27 Open Session

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 6 months ago

42 views

1:18

25 8 20 Dr Kelty Baker

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 6 months ago

51 views

0:55

Amyloidosis - Dr Liberman

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 6 months ago

52 views

2:58

25. 8. 8 Visit with Electrophysiologist

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 6 months ago

82 views

1:22

Unlock Your Potential: Psychology, Attitude & Taking Action #shorts

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 6 months ago

52 views

1:27

25 8 13 Dr Shari Liberman

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 6 months ago

57 views

1:33

25 8 6 STTT Dr Adrouge

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 6 months ago

27 views

17:47

Amyloidosis on X

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 6 months ago

566 views

1:28

25 7 30 Bill Schmidtknect

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 7 months ago

58 views

1:47

25 7 23 *Dr Heather Landau

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 7 months ago

69 views

2:29

25 7 16 Negative Self Talk

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 7 months ago

51 views

1:22

25 7 9 STTT Attruby

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 7 months ago

57 views

1:06

25 7 2 Dr Stacey Goodman

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 7 months ago

26 views

1:06

25 7 2 STTT Dr Stacey Goodman

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 8 months ago

39 views

2:30

25 6 26 STTT Identity

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 8 months ago

47 views

1:35

25 6 18 STTT Dr Bhimaraj

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 8 months ago

38 views

2:09

25 6 11 STTT Overcoming Setbacks

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 8 months ago

55 views

1:47

25 6 4 STTT Peltier

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 8 months ago

87 views

3:12

Dan Lier - NORD 25

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 8 months ago

80 views

1:54

25 5 21 STTT From Idea to Drug Approval

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 8 months ago

32 views

1:50

25 5 21 STTT 5 keys to thriving w Amyloidosis

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 9 months ago

200 views

1:23

Join Us This Wednesday!

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 9 months ago

24 views

1:27

Amyloidosis Support

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 9 months ago

41 views

22:15

WODC Keynote

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 9 months ago

83 views

0:35

Rare Disease Playbook Giveaway

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 9 months ago

55 views

1:02

Amyloidosis Patient Outreach

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 9 months ago

43 views

27:01

Dr Lenihan full

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 10 months ago

232 views

3:16

Join Us - Amyloidosis Outreach

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 10 months ago

52 views

0:23

Join Us Tonight!!

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 10 months ago

46 views

4:21

Amyloidosis - Achievable Nutrition Tips

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 10 months ago

238 views

1:36

Somebody To Talk To

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 10 months ago

52 views

1:02

Oncologist

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 10 months ago

261 views

1:36

25 4 2 STTT Cardiologist -- Vanderbilt

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 10 months ago

56 views

1:41

Somebody To Talk to

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 10 months ago

91 views

0:34

The Power of Language - Today

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 10 months ago

188 views

0:48

Day 2: Bradley Z Naifeh Amyloidosis Conference

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 10 months ago

53 views

0:39

Bradley Z Naifeh Amyloidosis Conference

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 10 months ago

57 views

1:34

Join on on Wednesday: The Power of Language

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 10 months ago

49 views

1:48

25 4 15 kidney follow up

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 11 months ago

130 views

3:47

Nephrologist Update (Kidney)

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 11 months ago

88 views

2:12

25. 3.11 Kidney doc Nephrologist

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 11 months ago

65 views

0:59

25 Edema Austin to Vegas

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 11 months ago

213 views

1:32

My Two Keys to Healing on the Amyloidosis Journey...

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 11 months ago

180 views

1:06

ECHO Testing - Amyloidosis

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 11 months ago

107 views

9:08

Manny Interview

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 11 months ago

175 views

1:31

Finding Your Care Team

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 11 months ago

78 views

4:37

24 12 18 Getting Your Kids To Call - Relationships

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 1 year ago

157 views

2:55

24 20 11 Neuropathy

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 1 year ago

179 views

4:04

24 11 6 Rituals

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 1 year ago

80 views

2:11

WAD PHX 24

Dan Lier Amyloidosis - The Amyloidosis Whisperer

Shared 1 year ago

73 views