Lennox-Gastaut Syndrome (LGS) Foundation

1:28:00

Workshop F: Building Your LGS Care Team and Care Plan

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7:12

Caregiver Perspective: High-Risk & Medically Complex Care

Lennox-Gastaut Syndrome (LGS) Foundation

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5:37

Update on EPX-100-003

Lennox-Gastaut Syndrome (LGS) Foundation

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11:07

Introduction to LGS Associated Disorders – Common Comorbidities and Their Impact on Care

Lennox-Gastaut Syndrome (LGS) Foundation

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19:35

The 24-Hour View: Managing Seizures, Clusters, and Status

Lennox-Gastaut Syndrome (LGS) Foundation

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17:28

Breathing Easier: Pneumonia, Aspiration, and Pulmonary Risk in LGS

Lennox-Gastaut Syndrome (LGS) Foundation

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14:27

The Other 8 Hours: Sleep in LGS and Why It Matters

Lennox-Gastaut Syndrome (LGS) Foundation

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22:29

Panel 3 - Bringing It All Together - Day 2: Families and Professionals in Conversation

Lennox-Gastaut Syndrome (LGS) Foundation

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1:27:47

Workshop G: Crisis Planning: Seizures, Hospitalizations, and Emergencies

Lennox-Gastaut Syndrome (LGS) Foundation

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1:21:48

WorkshopH: Building Frustration Tolerance: A Brain-First Approach to Growing Your Child's Resilience

Lennox-Gastaut Syndrome (LGS) Foundation

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24:43

Workshop I: Caring for the Whole Family: Reset, Redefine, Rebuild

Lennox-Gastaut Syndrome (LGS) Foundation

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52:30

Hope in Action: From Awareness to Change

Lennox-Gastaut Syndrome (LGS) Foundation

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10:50

LGS Voices Shaping Better Evidence

Lennox-Gastaut Syndrome (LGS) Foundation

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6:16

Sympazan (clobazam) Oral Film

Lennox-Gastaut Syndrome (LGS) Foundation

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8:48

Bexicaserin: An Investigational Therapy for Developmental and Epileptic Encephalopathies (DEEs)

Lennox-Gastaut Syndrome (LGS) Foundation

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6:00

Partnering with the LGS Community: Listening, Learning, & Advancing Research Together

Lennox-Gastaut Syndrome (LGS) Foundation

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6:23

Understanding the Behavioral Impact of LGS

Lennox-Gastaut Syndrome (LGS) Foundation

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14:52

Making Informed Choices: FINTEPLA (fenfluramine) for Your Loved One with Lennox-Gastaut Syndrome LGS

Lennox-Gastaut Syndrome (LGS) Foundation

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23:51

Finding Joy in the Journey

Lennox-Gastaut Syndrome (LGS) Foundation

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14:01

Could a Study or Trial Be Right for Us? A Family Guide to Clinical Research

Lennox-Gastaut Syndrome (LGS) Foundation

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12:58

Our Stories, Our Data: Inside the LGS-CORE Registry

Lennox-Gastaut Syndrome (LGS) Foundation

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16:32

From Question to Cure: The LGS Research Pipeline in 2026

Lennox-Gastaut Syndrome (LGS) Foundation

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7:56

Why I Said Yes to Research: Addison's Story

Lennox-Gastaut Syndrome (LGS) Foundation

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15:02

Lights Down on Day 1: Spotlight on Our Leaders in LGS

Lennox-Gastaut Syndrome (LGS) Foundation

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44:41

Workshop E: Devices to Make Life Easier in LGS

Lennox-Gastaut Syndrome (LGS) Foundation

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1:24:09

Workshop D: Is LGS Surgery and/or Neuromodulation Right for My Loved One?

Lennox-Gastaut Syndrome (LGS) Foundation

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1:04:41

Workshop C: Mapping Your LGS Care Roadmap

Lennox-Gastaut Syndrome (LGS) Foundation

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1:38:12

Workshop B: Rethinking Challenging Behavior

Lennox-Gastaut Syndrome (LGS) Foundation

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55:09

Workshop A: What Is Your Loved One's Precise Diagnosis?

Lennox-Gastaut Syndrome (LGS) Foundation

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25:32

Panel 2 - Bringing It All Together: Families and Professionals in Conversation

Lennox-Gastaut Syndrome (LGS) Foundation

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19:26

What Does Fundamental Care Include; How Do You Know You're Getting It?

Lennox-Gastaut Syndrome (LGS) Foundation

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12:01

Where Is LGS Care Strong? Where Are the Gaps?

Lennox-Gastaut Syndrome (LGS) Foundation

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6:02

Caregiver Perspective: Adult Care – Long-Term Care and Adult Support Needs

Lennox-Gastaut Syndrome (LGS) Foundation

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7:11

Caregiver Perspective: Transition of Care - Shift from Pediatric to Adult Care

Lennox-Gastaut Syndrome (LGS) Foundation

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5:57

Caregiver Perspective: Pediatric Care - Navigating Care in Early Childhood

Lennox-Gastaut Syndrome (LGS) Foundation

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17:55

Panel 1 - Bringing It All Together: Families and Professionals in Conversation

Lennox-Gastaut Syndrome (LGS) Foundation

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14:26

Right Treatment, Right Time: Treating Seizures by Pattern and Clock

Lennox-Gastaut Syndrome (LGS) Foundation

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13:44

LGS Today: Diagnosis, Comorbidities, and Today's Standard of Care

Lennox-Gastaut Syndrome (LGS) Foundation

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12:21

How Far We've Come, How Far We Have to Go

Lennox-Gastaut Syndrome (LGS) Foundation

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4:12

Lived Experience: What Is It Like to Grow Up in an LGS Family? LGS Sibling Perspective

Lennox-Gastaut Syndrome (LGS) Foundation

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6:19

Lived Experience: What Is It Like to Consider Surgery and Navigate All the Information

Lennox-Gastaut Syndrome (LGS) Foundation

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33:48

Keynote: What I Learned in 42 Years of Living with LGS

Lennox-Gastaut Syndrome (LGS) Foundation

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7:55

Welcome to Day 1!

Lennox-Gastaut Syndrome (LGS) Foundation

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8:22

LGS 101: What is Lennox-Gastaut Syndrome (LGS)?

Lennox-Gastaut Syndrome (LGS) Foundation

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1:39

Evidence-Based Care from Industry Partner Perspective

Lennox-Gastaut Syndrome (LGS) Foundation

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1:34

Building the Best Note - Panel Discussion

Lennox-Gastaut Syndrome (LGS) Foundation

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5:23

What methods can we use to advance evidence-based care across the LGS lifespan?

Lennox-Gastaut Syndrome (LGS) Foundation

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37:57

Knowing the cause of your child's seizures: Is it genetic?

Lennox-Gastaut Syndrome (LGS) Foundation

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38:14

What did we learn and what do we do next?

Lennox-Gastaut Syndrome (LGS) Foundation

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5:23

Clemizole (EPX-100): A Novel Treatment in Development for LGS

Lennox-Gastaut Syndrome (LGS) Foundation

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13:32

Meeting Wrap Up

Lennox-Gastaut Syndrome (LGS) Foundation

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22:42

Developing Patient Centric Seizure Action Plans for DEEs - One size doesn't fit all

Lennox-Gastaut Syndrome (LGS) Foundation

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25:14

Characterizing Sleep in LGS

Lennox-Gastaut Syndrome (LGS) Foundation

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23:03

Measuring Cognition and Behavior in LGS

Lennox-Gastaut Syndrome (LGS) Foundation

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22:44

Defining LGS in Undiagnosed Adults: How Do We Find Them?

Lennox-Gastaut Syndrome (LGS) Foundation

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25:06

Identifying the Best Stimulation Approaches to Seizures

Lennox-Gastaut Syndrome (LGS) Foundation

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25:39

Identifying EEG/Network Markers of DEEs and LGS in Children and Adults

Lennox-Gastaut Syndrome (LGS) Foundation

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17:06

LGS Learn from Every Patient Database

Lennox-Gastaut Syndrome (LGS) Foundation

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18:47

Learning from Animal Models: Where Are We Limited?

Lennox-Gastaut Syndrome (LGS) Foundation

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5:42

What evidence is needed now for adults in order to make decisions?

Lennox-Gastaut Syndrome (LGS) Foundation

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