British Porphyria Association

5:50

"Carry on, be you, and own the condition" - Selina's story with Variegate Porphyria

Shared 1 month ago

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6:07

Empowering People with Porphyria in the UK and Ireland - Alfresco 2024

British Porphyria Association

Shared 10 months ago

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6:34

"We're not alone, it's a porphyria family" - The importance of building community at Alfresco 2024

British Porphyria Association

Shared 11 months ago

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7:59

Kay's patient story

British Porphyria Association

Shared 2 years ago

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0:54

BPA Connect Alfresco 2022

British Porphyria Association

Shared 2 years ago

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5:06

The importance of genetic testing in acute porphyria

British Porphyria Association

Shared 3 years ago

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2:19

PAW 2022 launch with Sue Burrell from the BPA

British Porphyria Association

Shared 4 years ago

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3:16

Introducing Natassja - Mum to two children with EPP

British Porphyria Association

Shared 4 years ago

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4:00

Introducing Charlotte who has acute porphyria

British Porphyria Association

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1:53

Salman PAW 2022

British Porphyria Association

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14:12

Emerging therapies for acute hepatic porphyrias by Prof Jean-Charles Deybach

British Porphyria Association

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17:17

Emerging therapies for EPP/XLP (erythropoietic protoporphyrias) by Prof Jean-Charles Deybach

British Porphyria Association

Shared 4 years ago

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55:01

#LetsTalkPorphyria: Zwift cycle/chat: Antony & Ian talk to Liz about how porphyria affects them

British Porphyria Association

Shared 4 years ago

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3:34

#LetsTalkPorphyria: Meet Alicia (AIP) and Victoria (EPP) talk about their porphyria

British Porphyria Association

Shared 4 years ago

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6:25

#LetsTalkPorphyria: Meet Liz Gill and Sue Burrell from the British Porphyria Association

British Porphyria Association

Shared 4 years ago

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2:24

How are people affected by EPP (erythropoietic protoporphyria)?

British Porphyria Association

Shared 5 years ago

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1:01:58

BPA Festival 2019: EPP Interactive Session with Prof Mike Badminton

British Porphyria Association

Shared 5 years ago

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1:20

BPA Connect 2020: Acute porphyrias: VP/HCP and PBG tests

British Porphyria Association

Shared 5 years ago

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4:52

BPA Connect 2020: Acute porphyrias daily management

British Porphyria Association

Shared 5 years ago

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5:19

BPA Connect 2020: Acutes and regular testing

British Porphyria Association

Shared 5 years ago

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7:17

BPA Connect 2020: Acute therapies

British Porphyria Association

Shared 5 years ago

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3:27

BPA Connect 2020: EPP Toolkit on skin protection

British Porphyria Association

Shared 5 years ago

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6:11

BPA Connect 2020: Porphyria Toolkit: A whole approach to coping with pain

British Porphyria Association

Shared 5 years ago

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4:15

BPA Connect 2020: Porphyria Toolkit on understanding your feelings

British Porphyria Association

Shared 5 years ago

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2:30

BPA Connect 2020: Porphyria Toolkit on building confidence to explain your EPP needs

British Porphyria Association

Shared 5 years ago

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1:51

BPA Connect 2020: EPP Toolkit on describing EPP

British Porphyria Association

Shared 5 years ago

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8:18

BPA Connect 2020: EPP genetics and family planning

British Porphyria Association

Shared 5 years ago

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4:17

BPA Connect 2020: EPP: The benefits to exposing the skin to more light

British Porphyria Association

Shared 5 years ago

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13:48

BPA Connect 2020: EPP - monitoring including vitamin D and iron

British Porphyria Association

Shared 5 years ago

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7:22

BPA Connect 2020: EPP & PCT Therapies

British Porphyria Association

Shared 5 years ago

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1:53

BPA Connect 2020: Fundraising - Get Involved

British Porphyria Association

Shared 5 years ago

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10:05

BPA Connect 2020: Annual General Meeting (AGM) 19-Sept-2020

British Porphyria Association

Shared 5 years ago

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55:02

Living with chronic pain with Dr Deepak Ravindran (BPA Festival)

British Porphyria Association

Shared 5 years ago

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14:07

Psychology and mental health by Dr Rukshana Ali

British Porphyria Association

Shared 5 years ago

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1:56

British Porphyria Association Festival 2019 Final with Music by Joel Gardner

British Porphyria Association

Shared 6 years ago

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6:56

Gene Silencing and porphyria - Sue Burrell on BBC Breakfast - 13 April 2019

British Porphyria Association

Shared 6 years ago

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