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Edwards’ Syndrome Association
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Welcome to the official YouTube channel of The Edwards’ Syndrome Association! We're an all-volunteer 501(c)(3) dedicated to raising awareness about Trisomy 18. Here, you'll find supportive content focused on advocacy, hope, and community for families touched by Edwards’ Syndrome. We aim to empower parents with resources, inspiration, and practical ways to help their loved ones lead beautiful, thriving lives. Changing the dialogue begins with community—and we're committed to building one together.

We're so glad you're here—join us as we bring hope, connection, and positive change!

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38:29

Betty's Light: A Father's Story: Part 1

Edwards’ Syndrome Association

Shared 8 months ago

2 views

52:16

Every Voice Matters: Speech, AAC, and the many ways our children connect

Edwards’ Syndrome Association

Shared 9 months ago

4 views

44:37

MomPod: Therapy Talk Part 2

Edwards’ Syndrome Association

Shared 9 months ago

2 views

44:27

Breaking Barriers: Verity's Legacy Through Beverly's Eyes

Edwards’ Syndrome Association

Shared 9 months ago

2 views

45:25

Breaking Barriers: Verity's Legacy Through Beverly's Eyes

Edwards’ Syndrome Association

Shared 10 months ago

0 views

45:54

MomPod: Therapy Talk PT 1: Small Steps, Big Wins

Edwards’ Syndrome Association

Shared 10 months ago

4 views

1:06:12

Dadpod: Feeding Journeys- In The NICU and Beyond

Edwards’ Syndrome Association

Shared 10 months ago

12 views

1:05:59

Dadpod: Feeding Journeys- In The NICU and Beyond

Edwards’ Syndrome Association

Shared 10 months ago

11 views

39:07

Vinny's Journey: A Mother's Love Beyond Barriers

Edwards’ Syndrome Association

Shared 11 months ago

36 views

57:35

Breaking Barriers: Emma's Journey: Living with Edwards Syndrome, Told by Her Mother Kelly

Edwards’ Syndrome Association

Shared 11 months ago

11 views

34:31

Breaking Barriers: Living with loss and Loving through Grief

Edwards’ Syndrome Association

Shared 1 year ago

55 views

1:37:52

Breaking Barriers: Mia's Story of Strength, Love and Edwards Syndrome

Edwards’ Syndrome Association

Shared 1 year ago

6 views

48:05

🎙️Breathing Easier: Understanding Tracheostomy and Airway Malacia with Dr. Iverson

Edwards’ Syndrome Association

Shared 1 year ago

8 views

46:45

Breathing Easier: Understanding Tracheostomy and Airway Malacia with Dr. Iverson

Edwards’ Syndrome Association

Shared 1 year ago

13 views

1:15:40

Feeding with Purpose: Navigating Tubes, Blends & Growth with Betsy Hjelmgren

Edwards’ Syndrome Association

Shared 1 year ago

9 views

1:15:37

Breaking Barriers: Dad Edition

Edwards’ Syndrome Association

Shared 1 year ago

7 views

1:14:22

Breaking Barriers: Dad Edition

Edwards’ Syndrome Association

Shared 1 year ago

7 views

1:06:54

Through A Mothers Eyes- Surviving Childhood Cancer

Edwards’ Syndrome Association

Shared 1 year ago

10 views

1:05:34

Through A Mothers Eyes- Surviving Childhood Cancer

Edwards’ Syndrome Association

Shared 1 year ago

14 views

2:30

ADAPT A SWITCH TOY IN MINUTES!

Edwards’ Syndrome Association

Shared 1 year ago

18 views

1:00:28

Inside the Mind with Dr. Raskin

Edwards’ Syndrome Association

Shared 1 year ago

6 views

59:29

Inside The Mind With Dr. Raskin, Neurosurgeon

Edwards’ Syndrome Association

Shared 1 year ago

8 views

53:09

Breathing Through the Night: Understanding Sleep Apnea with Dr. Iverson

Edwards’ Syndrome Association

Shared 1 year ago

33 views

54:18

Breathing Through the Night: Understanding Sleep Apnea with Dr. Iverson

Edwards’ Syndrome Association

Shared 1 year ago

6 views

44:12

Hearing Loss Episode 2 with Dr. Iverson about Trisomy 18 and Cochlear Implants with Crystal Simpson

Edwards’ Syndrome Association

Shared 1 year ago

2 views

44:47

Hearing Loss Series-Episode 2 with Dr. Iverson and Crystal Simpson

Edwards’ Syndrome Association

Shared 1 year ago

14 views

1:26:09

Mia's Story: Conquering Epilepsy with Trisomy 18

Edwards’ Syndrome Association

Shared 1 year ago

38 views

33:31

Hearing Loss Series-(Mom Talk)

Edwards’ Syndrome Association

Shared 1 year ago

11 views

39:19

Hearing Loss Series-Episode 1

Edwards’ Syndrome Association

Shared 1 year ago

17 views

33:47

All About ESA

Edwards’ Syndrome Association

Shared 1 year ago

54 views

1:55

The Inaugural ESA 3.18K! #edwardssyndrome #trisomy18 #awareness

Edwards’ Syndrome Association

Shared 2 years ago

38 views

10:01

Rare Disease Day- Edwards Syndrome

Edwards’ Syndrome Association

Shared 2 years ago

40 views

1:31

Crystal with some great tips on CVI or Cortical Visual Impairment #edwardssyndrome #trisomy18 #cvi

Edwards’ Syndrome Association

Shared 2 years ago

12 views

2:31

Edwards’ Syndrome Siblings Project! #edwardssyndrome #trisomy18 #siblings

Edwards’ Syndrome Association

Shared 2 years ago

141 views

13:53

Neurological Chiropractic & Edwards' Syndrome/Trisomy 18 #edwardssyndrome #trisomy18

Edwards’ Syndrome Association

Shared 3 years ago

81 views

4:04

CPAP Masks- Pediatric

Edwards’ Syndrome Association

Shared 3 years ago

78 views

23:07

Pediatric Occupational Therapist- Tracy

Edwards’ Syndrome Association

Shared 3 years ago

121 views

4:28

At Home Therapies For Edwards’ Syndrome

Edwards’ Syndrome Association

Shared 3 years ago

117 views