SOFT Trisomy Support - Invidious

SOFT Trisomy Support

Welcome to the official YouTube channel of SOFT—the Support Organization for Trisomy 18, Trisomy 13 & Related Disorders.
For more than 40 years, SOFT has supported families with compassionate community, updated medical information, and real-life perspectives on raising a child with Trisomy 18, Trisomy 13, Trisomy 9, and similar rare chromosome conditions.

Here you’ll find:
✔ Expert interviews with neonatologists, geneticists, and medical leaders
✔ Family stories of hope, love, and lived experience
✔ Education on medical and ethical advances
✔ Resources for new & expectant parents
✔ Highlights from the SOFT Conference
✔ Videos that help change the narrative on Trisomy care

No family should face a Trisomy diagnosis alone.
Subscribe to connect with a global community that understands.

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Videos

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1:03:19

Caitlin’s Story: Living with Trisomy 18 | A Mother’s Journey with Trisomy 18 and Finding Support

SOFT Trisomy Support

Shared 1 week ago

72 views

4:51

Come Play With Us in Loveland | SOFT Conference Family Fun

SOFT Trisomy Support

Shared 2 weeks ago

69 views

1:11:14

Living with Trisomy 9: A Parent’s Journey, Hope for the Future, and Changing Perceptions

SOFT Trisomy Support

Shared 4 weeks ago

171 views

1:22:16

Trisomy 18 & Trisomy 13: Medical Experts Answer Real Family Questions (Trisomy Awareness Month)

SOFT Trisomy Support

Shared 1 month ago

243 views

50:22

Trisomy 9 Families & Medical Experts | Stories, Research, and Support (Talking Trisomy)

SOFT Trisomy Support

Shared 1 month ago

94 views

1:24:39

Talking Trisomy: Allison Thompson on Trisomy 9 Mosaic (Asmond Story)

SOFT Trisomy Support

Shared 2 months ago

65 views

4:14

Locking Love in Loveland | SOFT Conference 2026 Memorial

SOFT Trisomy Support

Shared 2 months ago

17 views

5:04

Loveland, Colorado Is Ready for SOFT Conference 2026

SOFT Trisomy Support

Shared 2 months ago

16 views

4:48

SOFT Conference 2026: Sibling Adventures You Don’t Want to Miss

SOFT Trisomy Support

Shared 2 months ago

24 views

3:42

All-Inclusive Playground in Colorado | SOFT Conference 2026

SOFT Trisomy Support

Shared 2 months ago

23 views

1:58:20

Rose’s Story: Trisomy 18 (Edwards Syndrome), Diagnosis, Advocacy, and Hope | Talking Trisomy

SOFT Trisomy Support

Shared 2 months ago

168 views

36:49

2026 SOFT Conference Preview | Loveland, Colorado | July 15–19

SOFT Trisomy Support

Shared 2 months ago

40 views

1:12:57

Raising a Child With Trisomy 9: Advocacy, Milestones, and Resilience

SOFT Trisomy Support

Shared 2 months ago

173 views

1:40:07

Dawson’s Story: 18 Years with Trisomy 18, Advocacy, and Choosing Joy

SOFT Trisomy Support

Shared 4 months ago

145 views

5:23

How to Build a Bird Feeder | Trisomy Sibling Support Activity

SOFT Trisomy Support

Shared 4 months ago

66 views

20:14

Eagle Scout Honors Cousin With Trisomy 18: A Sibling Support Kit Project (SOFT)

SOFT Trisomy Support

Shared 4 months ago

147 views

1:03:02

Faith’s Story: A Mother’s Trisomy 13 Journey Through Diagnosis, Love, Loss & Hope

SOFT Trisomy Support

Shared 4 months ago

467 views

1:18:52

Trisomy 18 Explained Through a Family’s Story: Care Decisions, Challenges & Hope

SOFT Trisomy Support

Shared 4 months ago

217 views

3:28

How Trisomy 18 and 13 Care Evolved: Dr. John Carey on Changing Medical Perspectives

SOFT Trisomy Support

Shared 5 months ago

38 views

5:05

How Medicine and Ethics Have Evolved: Lessons from Down Syndrome to Trisomy 18 and 13

SOFT Trisomy Support

Shared 5 months ago

11 views

1:35:32

Trisomy 18 & Trisomy 13 | Changing the Narrative in Medicine | Dr Alaina Pyle & Dr John Carey | SOFT

SOFT Trisomy Support

Shared 5 months ago

402 views

1:08:23

Trisomy 18 & Trisomy 13 | Creating the New & Expectant Parent Books | SOFT Podcast Panel

SOFT Trisomy Support

Shared 5 months ago

34 views

2:10

Love Lifts Us: The Power of the SOFT Conference Trisomy 9, 13 & 18 Family Support

SOFT Trisomy Support

Shared 6 months ago

115 views

2:45

The Power of Community: How SOFT Supports Trisomy Families

SOFT Trisomy Support

Shared 6 months ago

46 views

5:02

Who Is SOFT? | Supporting Families and Changing the Trisomy Narrative

SOFT Trisomy Support

Shared 6 months ago

153 views

2:15

SOFT Conference 2023 | Greenville, SC | Trisomy 13, Trisomy 18, Trisomy 9 & Other Related Disorders

SOFT Trisomy Support

Shared 7 months ago

53 views

4:01

SOFT Conference 2025 – Highlights | Indianapolis, Indiana

SOFT Trisomy Support

Shared 7 months ago

153 views

58:00

2025 Trisomy 9 Doctor Panel | Trisomy Awareness Month

SOFT Trisomy Support

Shared 9 months ago

82 views

1:03:32

2025 Trisomy 13 & 18 Doctor Panel | Trisomy Awareness Month

SOFT Trisomy Support

Shared 9 months ago

102 views

1:09:26

2024 Trisomy 18 Medical Panel | SOFT Trisomy Awareness Month

SOFT Trisomy Support

Shared 11 months ago

60 views

1:21:41

2024 Trisomy 13 Awareness Panel | SOFT Trisomy Awareness Month

SOFT Trisomy Support

Shared 11 months ago

38 views

1:25:34

Perspectives on the Care and Management of Children with Trisomy 13 & 18 Syndromes

SOFT Trisomy Support

Shared 1 year ago

480 views

11:51

SOFT 2022 Stars

SOFT Trisomy Support

Shared 3 years ago

248 views

21:27

Dr. John Carey - SOFT 2022 Lifetime Achievement Award

SOFT Trisomy Support

Shared 3 years ago

146 views

1:02:12

2022 SOFT Medical Advisory Board Round Table

SOFT Trisomy Support

Shared 4 years ago

475 views

36:44

2021 SOFT Candle Lighting Remembrance Ceremony

SOFT Trisomy Support

Shared 4 years ago

354 views

48:39

Finding Words for our Grief

SOFT Trisomy Support

Shared 4 years ago

91 views

48:44

Finding Solutions: Managing Photosensitive Seizures, Light Sensitivity and Ocular Health

SOFT Trisomy Support

Shared 4 years ago

659 views

59:06

Supplemental Needs Trusts

SOFT Trisomy Support

Shared 4 years ago

41 views

1:01:42

Lean on Us: An Overview and Review of TRIS Project Activities

SOFT Trisomy Support

Shared 4 years ago

46 views

1:20:47

Fitting and Adjusting Mobility Equipment

SOFT Trisomy Support

Shared 4 years ago

48 views

55:24

Face the Sun Art Session

SOFT Trisomy Support

Shared 4 years ago

11 views

1:02:39

SOFT 2021 Virtual Conference Parade of Stars

SOFT Trisomy Support

Shared 4 years ago

95 views

41:01

Spectrum of Epilespsy in Trisomy 18

SOFT Trisomy Support

Shared 4 years ago

177 views

53:14

Aquatic Therapy

SOFT Trisomy Support

Shared 4 years ago

67 views

53:25

Newborn Airway Evaluation and Mandibular Distraction in Trisomy 18

SOFT Trisomy Support

Shared 4 years ago

477 views

56:55

2021 Version - Perspectives on the Care of Children with Trisomy 18 and 13

SOFT Trisomy Support

Shared 4 years ago

437 views

1:05:22

Trisomy 13 and 18 - The Basics - 2021 version

SOFT Trisomy Support

Shared 4 years ago

1.4K views

54:20

Congenital Heart Surgery in Trisomy 13 and 18 - An Update and Future Directions

SOFT Trisomy Support

Shared 4 years ago

421 views

1:02:16

Interdisciplinary Care of Children with Trisomy 13 and 18

SOFT Trisomy Support

Shared 4 years ago

756 views

43:08

2020 SOFT Candle Lighting Ceremony

SOFT Trisomy Support

Shared 5 years ago

231 views

57:24

2020 SOFT Friends Video Presentation

SOFT Trisomy Support

Shared 5 years ago

188 views

29:13

SOFT Virtual Conference Closing Event

SOFT Trisomy Support

Shared 5 years ago

32 views

1:03:13

Update 2020 on Seizures, Light Sensitivity and Headaches

SOFT Trisomy Support

Shared 5 years ago

497 views

1:05:44

Tumor Risk and Surveillance in Trisomy 18

SOFT Trisomy Support

Shared 5 years ago

202 views

1:24:38

2020 Trisomy 13/18 The Basics

SOFT Trisomy Support

Shared 5 years ago

1.7K views

1:01:42

Heartland Cares: Quality of Life and Family Impact in Caring for Children with Trisomy 13 and 18

SOFT Trisomy Support

Shared 5 years ago

220 views

54:23

Support for the Grieving Sibling

SOFT Trisomy Support

Shared 5 years ago

75 views

1:07:39

Advances in the Care of Newborns & Infants with Trisomy 18 and 13

SOFT Trisomy Support

Shared 5 years ago

450 views

1:04:12

Adapted Seating and Mobility

SOFT Trisomy Support

Shared 5 years ago

113 views