I'm Mel, an Aussie in my mid-twenties just trying to do the best I can, with what I have, exactly where I'm at.
Here I share my experience of life with chronic illness and disability, to encourage others, and raise awareness.
Even though the doctors told me I would spend my life in bed, I'm pursuing healing, trying to be as healthy as possible, and finding ways to improve & adapt to my condition in my day-to-day life functioning in my surroundings.
I'm learning to see God's grace in hard places and heal from trauma
I have been told I have a genetic connective tissue disorder called Ehlers-Danlos Syndrome (EDS). As connective tissue is everywhere in the body, EDS affects many systems in my body, some secondary conditions I also talk about are CCI & AAI, POTS, Scoliosis, MCAS, TMJ issues, MALS, and Endometriosis.
I used to have a feeding tube, but now I don't :D
Links: linktr.ee/purpose_in_this_journey
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here's why the DNRS program didn't work for me (and what has helped)Pro's, Con's,Gaps, My Experience
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MY HEALTHIEST BIRTHDAY IN YEARS, lake dates, campfires, and Harry Potter trivia (birthday week vlog)
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surprising my husband with a new wardrobe, making big changes to my nutrition & health improvements!
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Meeting my Nephew for the first time! Celebrating big health improvements! + a huge mold issue(vlog)
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Reading POPULAR YouTube books to see if they're worth the hype + getting out of a slump! April & May
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How I was Diagnosed with CCI & AAI (Craniocervical Instability & Atlantoaxial Instability). My Story
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Real Talk: Culture shock, Functioning in the World Around Me, Grief & Birthdays with Chronic Illness
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MY NECK PARTIALLY DISLOCATES WHEN I TURN MY HEAD Neurosurgeon apt. Finally finding out what's wrong!
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