RASopathies Network Videos - Invidious

RASopathies Network Videos

RASopathies are a group of genetic syndromes that may be as common as 1:1000. The syndromes RASopathies Network focuses on include: cardio-facio-cutaneous (CFC), Costello (CS), LEOPARD/NSML, Neurofibromatosis type 1 (NF1), and Noonan (NS).

Our mission is to advance research to improve the quality of life for RASopathies families by bringing together families, clinicians and scientists.

RASopathiesNet is the product of RASopathies Network USA, a 501c3 Non-Profit, and the RASopathies Network UK.

View channel on YouTube

Switch Invidious Instance

Videos

newest

oldest

popular

13:08

Treating ARFID in RASopathies with CBT - Dagmar Tiemens

RASopathies Network Videos

Shared 2 months ago

16 views

9:14

Living with NSML: A Family Perspective - Tammy Bowers

RASopathies Network Videos

Shared 2 months ago

44 views

6:31

Closing Remarks: Thank You & Call to Action | 9th International RASopathies Symposium

RASopathies Network Videos

Shared 2 months ago

14 views

20:19

Using Intestinal Organoids to Study Rare Disorders - Dr. Abdul Elkadri

RASopathies Network Videos

Shared 2 months ago

43 views

19:47

Prenatal RASopathies: Testing, Diagnosis & Genotypes - Dr. Alessandro De Luca

RASopathies Network Videos

Shared 2 months ago

16 views

23:06

PTPN11 Signaling & Hypertrophic Cardiomyopathy in NSML - Dr. Anton Bennett

RASopathies Network Videos

Shared 2 months ago

37 views

7:49

Living with HINCONS: A Family Perspective - Chuck Lawson

RASopathies Network Videos

Shared 2 months ago

52 views

11:26

Mitochondrial Dysfunction in Costello Syndrome - Dr. Cristina Nuevo-Tapioles

RASopathies Network Videos

Shared 2 months ago

22 views

11:25

Visual Hypersensitivity & Sensory Processing in NF1 - Dr. J. Elliott Robinson

RASopathies Network Videos

Shared 2 months ago

11 views

22:29

Genotypes Matter: Allele-Specific Clinical Management - Dr. Emma Burkitt Wright

RASopathies Network Videos

Shared 2 months ago

45 views

21:28

Pyloric Dysfunction in Children with Chronic Nausea - Dr. John E. Fortunato

RASopathies Network Videos

Shared 2 months ago

66 views

14:38

Measuring Cortical Myelin in RASopathies with MRI - Dr. Julia Plank

RASopathies Network Videos

Shared 2 months ago

23 views

14:03

The Unique Neurodevelopmental Phenotype of MAPK1 RASopathy - Kassidy Grover

RASopathies Network Videos

Shared 2 months ago

19 views

21:42

MEK Inhibitors for Cardiac & Lymphatic Complications - Dr. Kathryn Chatfield

RASopathies Network Videos

Shared 2 months ago

44 views

21:56

Feeding Avoidance & Clinical Gaps in RASopathies - Dr. Keir Shiels

RASopathies Network Videos

Shared 2 months ago

38 views

11:47

Raising a Child with CFC Syndrome: A Father's Perspective - Les Rogers

RASopathies Network Videos

Shared 2 months ago

33 views

9:11

Living with Noonan Syndrome: A Family Perspective - Lindsay Homan

RASopathies Network Videos

Shared 2 months ago

424 views

24:52

Metabolic Profiling in NF1: Understanding Growth Differences - Dr. Miriam Bornhorst

RASopathies Network Videos

Shared 2 months ago

68 views

14:16

Academic Achievement & Learning Disorders in Noonan Syndrome - Dr. Sara Pardej

RASopathies Network Videos

Shared 2 months ago

95 views

22:59

Mechanisms of Learning Disabilities in RASopathies - Dr. Yong-Seok Lee

RASopathies Network Videos

Shared 2 months ago

22 views

30:37

The Future of Clinical Trials & Therapies for RASopathies - Dr. Bruce D. Gelb

RASopathies Network Videos

Shared 2 months ago

61 views

39:29

Molecular Analysis of the RAS/MAPK Pathway - Dr. Frank McCormick

RASopathies Network Videos

Shared 2 months ago

148 views

14:52

Living with Costello Syndrome: A Family Perspective - Lisa Schoyer

RASopathies Network Videos

Shared 2 months ago

52 views

26:30

Mental Health in RASopathies: Caregiver & Patient Voices - Dr. Rene Pierpont

RASopathies Network Videos

Shared 2 months ago

22 views

58:48

Learning How to Learn

RASopathies Network Videos

Shared 1 year ago

35 views

58:26

RASNet Introduces CURE ID RASopathies Survey

RASopathies Network Videos

Shared 1 year ago

146 views

1:09:39

Tethered Cord: Implications for the RASopathies - 5 May, 2024

RASopathies Network Videos

Shared 1 year ago

394 views

59:28

RASopathies: Study of Brain and Cognitive Development in Children with Noonan syndrome and NF1

RASopathies Network Videos

Shared 2 years ago

425 views

58:51

An Update on the Clinical Trial Using Vosoritide for Growth in Noonan syndrome

RASopathies Network Videos

Shared 3 years ago

495 views

56:12

RASopathies Net Webinar: Exploring MEK Inhibitors

RASopathies Network Videos

Shared 3 years ago

395 views

42:52

Feeding Problems in RASopathies, by Dagmar Tiemens, PhD Candidate, with Jos Draaisma, MD, PhD

RASopathies Network Videos

Shared 3 years ago

361 views

1:00:17

RASopathies Net Webinar: Bleeding Issues in RASopathies

RASopathies Network Videos

Shared 3 years ago

267 views

57:57

RASopathies Net Webinar: What is the NCI's RASopathies Natural History Study?

RASopathies Network Videos

Shared 4 years ago

185 views

56:31

RASopathies Net Webinar: Social Behavior in RASopathies: Are We Missing Areas of Strength?

RASopathies Network Videos

Shared 4 years ago

182 views

58:09

RASNet COVID19 Webinar 2021 August 15

RASopathies Network Videos

Shared 4 years ago

684 views

5:10

What are the RASopathies (updated)

RASopathies Network Videos

Shared 4 years ago

4K views

1:10:04

RASopathies Hack4Rare Webinar

RASopathies Network Videos

Shared 4 years ago

313 views

1:11:28

RASopathies Lymphatic Webinar April 25th 2021

RASopathies Network Videos

Shared 4 years ago

442 views

53:01

v4 RASopathies covid vaccine 2021 01 24

RASopathies Network Videos

Shared 5 years ago

512 views

51:33

Rasopathiesnet zoom call november 2020

RASopathies Network Videos

Shared 5 years ago

102 views

34:52

RASopathies Net Webinar: Dr. Andrew Dauber

RASopathies Network Videos

Shared 5 years ago

250 views