Foundation for Inherited Arrhythmias - Invidious

Foundation for Inherited Arrhythmias

The Foundation for Inherited Arrhythmias (FIA), formerly the SADS Foundation, supports people and families affected by inherited arrhythmia conditions – including long QT syndrome, Brugada syndrome, CPVT, ACM (also known as ARVC), and other genetic heart rhythm conditions. ❤️🧬

For more than 35 years, we've worked to make sure a diagnosis leads somewhere: to answers, to community, and to a path forward. Our channel features condition and gene-specific education from leading specialists, recorded webinars, community stories, and Ask the Experts sessions.

New videos are posted regularly. Subscribe to follow along.

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52:10

Mental Health and Inherited Arrhythmias: Managing Fear and Rebuilding Confidence

Foundation for Inherited Arrhythmias

Shared 2 weeks ago

87 views

7:50

SADS is now FIA | Hear from Dr. Michael Ackerman

Foundation for Inherited Arrhythmias

Shared 2 weeks ago

189 views

6:07

Warning Signs Every Parent Should Know, From a Mayo Clinic Heart Doctor

Foundation for Inherited Arrhythmias

Shared 1 month ago

68 views

5:03

Dangerous Faint or Normal Faint? Dr. Michael Ackerman Explains the Warning Signs

Foundation for Inherited Arrhythmias

Shared 1 month ago

106 views

3:45

"Now is the time" | An urgent message about clinical trials from Dr. Michael Ackerman

Foundation for Inherited Arrhythmias

Shared 3 months ago

111 views

56:23

AI, Dr. Google, and Finding Reliable Health Information

Foundation for Inherited Arrhythmias

Shared 4 months ago

46 views

1:00:05

Genetic Testing for Inherited Arrhythmias: What Patients and Families Should Know

Foundation for Inherited Arrhythmias

Shared 5 months ago

125 views

1:06:49

Learn about the FIA Care Tool

Foundation for Inherited Arrhythmias

Shared 5 months ago

49 views

2:08

Candle Lighting 2025 ❤️🕯️ | Honoring Those We’ve Lost

Foundation for Inherited Arrhythmias

Shared 8 months ago

191 views

58:01

Long QT Syndrome Diagnosis and Treatments: Addressing the Gaps

Foundation for Inherited Arrhythmias

Shared 9 months ago

297 views

52:19

Medication Safety for Long QT Syndrome

Foundation for Inherited Arrhythmias

Shared 11 months ago

151 views

59:17

CPVT Gene Therapy: Understanding the Gene ARTEMIS Clinical Trial

Foundation for Inherited Arrhythmias

Shared 11 months ago

252 views

41:22

Is This Medication Safe with Long QT Syndrome? Using CredibleMeds

Foundation for Inherited Arrhythmias

Shared 11 months ago

97 views

1:11:41

DSP Cardiomyopathy: Research Updates and Expert Insights

Foundation for Inherited Arrhythmias

Shared 11 months ago

900 views

0:26

Bella's story

Foundation for Inherited Arrhythmias

Shared 11 months ago

63 views

59:56

Gene Therapy for ARVC: Understanding the Science and Current Research

Foundation for Inherited Arrhythmias

Shared 1 year ago

265 views

18:03

Diagnosing and Managing Arrhythmogenic Cardiomyopathy | 2020 Virtual Conference

Foundation for Inherited Arrhythmias

Shared 1 year ago

299 views

7:51

Role of Catheter Ablation and Sympathectomy in ACM | 2020 Virtual Conference

Foundation for Inherited Arrhythmias

Shared 1 year ago

93 views

1:00:36

Fireside Chat with Dr. Michael Ackerman | 2020 Virtual Conference

Foundation for Inherited Arrhythmias

Shared 1 year ago

98 views

48:14

Future Therapies for Arrhythmias: A Sneak Peek into Tomorrow | 2020 Virtual Conference

Foundation for Inherited Arrhythmias

Shared 1 year ago

67 views

36:49

Personalized Medicine: from Drugs to Denervation to Device | SADS 2020 Virtual Conference

Foundation for Inherited Arrhythmias

Shared 1 year ago

74 views

33:11

The ABCs of ACM (Arrhythmogenic Cardiomyopathy)

Foundation for Inherited Arrhythmias

Shared 1 year ago

236 views

27:13

ARVC Research Update with Cindy James | Presented at the 2020 SADS Foundation Conference

Foundation for Inherited Arrhythmias

Shared 1 year ago

63 views

36:02

Hypoglycemia and Timothy Syndrome | Paul S. Thornton, MD

Foundation for Inherited Arrhythmias

Shared 1 year ago

104 views

30:26

Updates with Mouse Models and Timothy Syndrome | Jeffrey Pitt, Duke University

Foundation for Inherited Arrhythmias

Shared 1 year ago

100 views

14:36

Atypical Syndactyly and Timothy Syndrome | Jennifer Ty

Foundation for Inherited Arrhythmias

Shared 1 year ago

115 views

40:51

How genes influence brain function in Timothy Syndrome | Elizabeth M. Tunbridge

Foundation for Inherited Arrhythmias

Shared 1 year ago

128 views

27:20

Updates on iPSc studies for Timothy Syndrome | Sergiu P. Pașca

Foundation for Inherited Arrhythmias

Shared 1 year ago

143 views

1:43:32

SADS Foundation & PACES: Advancing the Field | 🩺 Physicians Breakout Session

Foundation for Inherited Arrhythmias

Shared 1 year ago

105 views

23:14

The Future of Inherited Arrhythmias: Open Discussion

Foundation for Inherited Arrhythmias

Shared 1 year ago

47 views

1:29:38

Allied Professionals Open Discussion: Sudden Cardiac Arrest

Foundation for Inherited Arrhythmias

Shared 1 year ago

37 views

22:18

How I Rule Out Long QT Syndrome in “Borderline” Cases | Dr. Michael Ackerman

Foundation for Inherited Arrhythmias

Shared 1 year ago

611 views

15:06

Sudden cardiac arrest | What's next after an SCA? ❤️⚡

Foundation for Inherited Arrhythmias

Shared 1 year ago

58 views

13:12

RYR2: Big Gene, Too Many Phenotypes | Prince Kannankeril

Foundation for Inherited Arrhythmias

Shared 1 year ago

276 views

15:11

Subcutaneous ICDs (S-ICDs) in Inherited Arrhythmias: Preventing Complications or Increasing Shocks?

Foundation for Inherited Arrhythmias

Shared 1 year ago

53 views

17:03

Unexpected Rapid Monomorphic Ventricular Ectopy at Peak Exercise | Advancing the Field with PACES

Foundation for Inherited Arrhythmias

Shared 1 year ago

31 views

14:44

Establishing an Inherited Arrhythmia Program | Advancing the Field with PACES

Foundation for Inherited Arrhythmias

Shared 1 year ago

41 views

12:53

Sudden Cardiac Arrest in the young: how are we doing? | a national overview with Project ADAM

Foundation for Inherited Arrhythmias

Shared 1 year ago

22 views

1:09:01

What makes your rare heart different? | Aarti Dalal, Vanderbilt University

Foundation for Inherited Arrhythmias

Shared 1 year ago

273 views

42:03

What is SCN5A? | Dr. Arthur Wilde, Amsterdam UMC

Foundation for Inherited Arrhythmias

Shared 1 year ago

454 views

34:07

Long QT Syndrome Type 5 | Yukiko Asaki, Primary Children's Medical Center

Foundation for Inherited Arrhythmias

Shared 1 year ago

122 views

1:06:48

Pregnancy with an inherited heart condition 🧬❤️

Foundation for Inherited Arrhythmias

Shared 1 year ago

151 views

1:33:49

ICD Journeys – Patient Stories and Lessons Learned

Foundation for Inherited Arrhythmias

Shared 1 year ago

174 views

43:34

Assistive Technology

Foundation for Inherited Arrhythmias

Shared 1 year ago

66 views

28:16

State of Gene Therapy for SADS | Greg Webster

Foundation for Inherited Arrhythmias

Shared 1 year ago

79 views

42:15

Universal Screening for SADS Conditions: Which Ones, When, and How? | Dr. Arthur Wilde

Foundation for Inherited Arrhythmias

Shared 1 year ago

37 views

54:53

Question and Answer Panel | Presented at the 2021 SADS Foundation Conference

Foundation for Inherited Arrhythmias

Shared 1 year ago

71 views

56:07

Gene-Elusive Inherited Arrhythmias: When Genetic Testing Doesn’t Find an Answer

Foundation for Inherited Arrhythmias

Shared 1 year ago

110 views

36:00

Advocacy Training 101 with EveryLife Foundation

Foundation for Inherited Arrhythmias

Shared 1 year ago

16 views

50:04

What’s on the Horizon for ICDs? | Charles Berul

Foundation for Inherited Arrhythmias

Shared 1 year ago

42 views

19:07

"That Miss Massachusetts crown gave me the megaphone for hearts across the world"

Foundation for Inherited Arrhythmias

Shared 1 year ago

41 views

1:00:58

Q&A with Michael Ackerman and Harikrishna Tandri

Foundation for Inherited Arrhythmias

Shared 1 year ago

85 views

23:16

Patient Participation in Research & The Brugada Project

Foundation for Inherited Arrhythmias

Shared 1 year ago

32 views

2:04:23

Pediatric CPVT: Let’s RYR2gether! | 2021 PACES Educational Conference with SADS

Foundation for Inherited Arrhythmias

Shared 1 year ago

215 views

55:10

Gene Therapy 102: Research & Future Outlook | Andrew Landstrom & Aravind Asokan

Foundation for Inherited Arrhythmias

Shared 1 year ago

224 views

1:01:05

Gene Therapy 101 for Inherited Heart Conditions

Foundation for Inherited Arrhythmias

Shared 1 year ago

460 views

49:50

Summer Activities & Safety Tips | Aarti Dalal, DO

Foundation for Inherited Arrhythmias

Shared 1 year ago

101 views

11:47

❓ Commonly Asked Questions | Charles Berul

Foundation for Inherited Arrhythmias

Shared 1 year ago

44 views

55:34

🧪 Personalized Medicine: From Drugs to Denervation to Devices

Foundation for Inherited Arrhythmias

Shared 1 year ago

74 views

27:20

Research Updates in Arrhythmias | Christina Miyake, Texas Children's Hospital

Foundation for Inherited Arrhythmias

Shared 1 year ago

96 views