I was diagnosed with Hypermobilie Ehlers Danlos Syndrome (HEDS or EDS), Postural Orthostatic Tachycardia Syndrome (POTS) and Mast Cell Activation Syndrome (MCAS) this year. I'm looking for support through information as well as to spread awareness for these syndromes as general public knowledge is lacking as well as education within the medical system. I would love to help others learn, while also learning more about EDS from those who know more than me. The medical system is failing us, so the more online community support the better. Please subscribe and follow along as we figure this out together.
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Shared 1 year ago
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