The Ehlers-Danlos Society - Invidious

The Ehlers-Danlos Society

The Ehlers-Danlos Society is a global organization dedicated to advancing and accelerating research and education in Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). We support the development of effective and equitable EDS and HSD therapies and work collaboratively to improve the lives of individuals affected by EDS and HSD.

Our vision is to create a world in which each person living with the Ehlers-Danlos syndromes and hypermobility spectrum disorders has the right treatment and care at the right time for their specific needs. Find support and information at ehlers-danlos.com

Any medical information found here should be discussed with your doctors thoroughly before taking action.

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19:21

How to engage in activities with modification with EDS & HSD - Dr. Aiko Callahan - 2024 GLC

The Ehlers-Danlos Society

Shared 5 days ago

62 views

21:28

Panel Q&A Fascia from Head to Toe: A Fascia Perspective on EDS & HSD - 2024 GLC

The Ehlers-Danlos Society

Shared 5 days ago

71 views

19:07

Fascial Counterstrain: A Novel Manual Therapy with Dr. Brianna Cardenas - 2024 GLC

The Ehlers-Danlos Society

Shared 5 days ago

584 views

18:04

Panel Q&A Knees, Ankles, Feet, & Mobility - 2024 Global Learning Conference

The Ehlers-Danlos Society

Shared 5 days ago

21 views

17:23

Fascia Science: Its Relation to EDS & HSD with Dr. Tina Wang - 2024 GLC

The Ehlers-Danlos Society

Shared 5 days ago

646 views

19:05

Fascia Movement and Exercise with Jeannie Di Bon - 2024 GLC

The Ehlers-Danlos Society

Shared 5 days ago

267 views

14:03

The Importance of Foot Posture & Footwear with Dr. Valerie Iovine - GLC 2024

The Ehlers-Danlos Society

Shared 6 days ago

45 views

20:13

Managing Hypermobility in children: Advice and practical solutions - Jennifer Penston - 2024 GLC

The Ehlers-Danlos Society

Shared 6 days ago

17 views

22:29

Soft Tissue Surgery in Collagen Disease - Dr. Patrick Agnew - 2024 GLC

The Ehlers-Danlos Society

Shared 1 week ago

38 views

12:55

Updates on The Ehlers-Danlos Society: EDS ECHO - Dr. Alan Hakim - 2024 GLC

The Ehlers-Danlos Society

Shared 1 week ago

74 views

20:53

Recent Advances in musculocontractural Ehlers-Danlos Syndrome (mcEDS) - Dr. Tomoki Kosho - 2024 GLC

The Ehlers-Danlos Society

Shared 1 week ago

21 views

3:14

Strava Art Like No Other! The Great Strava Cycle

The Ehlers-Danlos Society

Shared 1 month ago

206 views

2:02

Thank you Australia! Relive the 2025 Global Learning Conference

The Ehlers-Danlos Society

Shared 3 months ago

404 views

2:58

Making a difference for EDS and HSD — Thank you 2024!

The Ehlers-Danlos Society

Shared 6 months ago

1K views

32:10

Equitable Care: Empowering Marginalized Voices in EDS and HSD

The Ehlers-Danlos Society

Shared 7 months ago

869 views

2:49

The Ehlers-Danlos Society 2024 Global Learning Conference

The Ehlers-Danlos Society

Shared 9 months ago

755 views

4:08

Celebrating 5 Years of EDS ECHO

The Ehlers-Danlos Society

Shared 11 months ago

761 views

55:17

'Conversations With' Series: Accessing care as a 2SLGBTQIA+ individual

The Ehlers-Danlos Society

Shared 1 year ago

623 views

19:13

2021 Visceral Arteries in vEDS - Dr. Amani Politano

The Ehlers-Danlos Society

Shared 1 year ago

398 views

18:35

2021 The Aorta and Iliac Arteries Pathology in vEDS - Dr. Sherene Shalhub

The Ehlers-Danlos Society

Shared 1 year ago

429 views

19:01

2021 Family Planning, Anticipating & Managing Pregnancy Complications - Dr. Melissa Russo

The Ehlers-Danlos Society

Shared 1 year ago

206 views

15:34

2021 Carotid, Vertebral, and Subclavian Arteries in vEDS - Dr. John Westley Ohman

The Ehlers-Danlos Society

Shared 1 year ago

368 views

16:37

2021 What My Toolbox Looks Like, And How You Could Build Yours - Katie Wright

The Ehlers-Danlos Society

Shared 1 year ago

222 views

20:02

2021 Outpatient Medical Management in vEDS - Dr. Fleur Van Dijk & Dr. Glenda Sobey

The Ehlers-Danlos Society

Shared 1 year ago

171 views

12:42

2021 Gene Modifiers Loci Associated to Colonic Perforation - Dr. Xavier Jeunemaitre

The Ehlers-Danlos Society

Shared 1 year ago

114 views

14:38

2021 Migraine in vascular EDS - Dr. Manjit Matharu

The Ehlers-Danlos Society

Shared 1 year ago

377 views

8:29

2021 Ambulatory BP Study - Dr. Siddarth Prakash

The Ehlers-Danlos Society

Shared 1 year ago

164 views

10:46

2021 Genetics and Molecular Biology in vEDS - Dr. Lauren Puryear

The Ehlers-Danlos Society

Shared 1 year ago

85 views

9:40

2021 Natural History Study Update - Dr. Stephanie Wallace

The Ehlers-Danlos Society

Shared 1 year ago

66 views

16:21

2021 Psychosocial Issues in Patients Living With vEDS - Leanne Barrett

The Ehlers-Danlos Society

Shared 1 year ago

185 views

9:29

2021 Intestinal Emergencies in vEDS - Dr. Jessica A. Zagory

The Ehlers-Danlos Society

Shared 1 year ago

159 views

21:26

2021 Interpreting the Genetic Testing Report - Dr. Duncan Baker & Dr. Neeti Ghali

The Ehlers-Danlos Society

Shared 1 year ago

342 views

13:05

2021 School Adaptations for vEDS - Jared Griffin

The Ehlers-Danlos Society

Shared 1 year ago

129 views

31:10

2021 Managing Lumbar Instability - Dr.Russek

The Ehlers-Danlos Society

Shared 1 year ago

534 views

33:40

2021 Peripheral Neuropathy - Dr. David Saperstein

The Ehlers-Danlos Society

Shared 1 year ago

681 views

23:46

2021 Persistent Headache and Migraine - Dr. Salwa Kamourieh

The Ehlers-Danlos Society

Shared 1 year ago

391 views

33:26

2021 Orthostatic Headache - Dr. Manjit Matharu

The Ehlers-Danlos Society

Shared 1 year ago

232 views

19:55

2022 Autoimmune Rheumatic Disease and Ehlers-Danlos Syndromes - Dr. Clair Francomano

The Ehlers-Danlos Society

Shared 1 year ago

501 views

15:31

2022 Coping with the Challenges and Fears of MCAS - Courtney Rabb

The Ehlers-Danlos Society

Shared 1 year ago

213 views

25:11

2022 Immune Dysfunction in HSD and EDS: Beyond Mast Cell Activation Disease - Dr. Anne Maitland

The Ehlers-Danlos Society

Shared 1 year ago

772 views

46:27

2022 Our Immune System - Dr. Anne Maitland

The Ehlers-Danlos Society

Shared 1 year ago

258 views

30:53

2022 Disorders of Mast Cells and Mast Cell Activation - Dr. Mariana Castells

The Ehlers-Danlos Society

Shared 1 year ago

612 views

31:19

2022 Inflammation, Pain, and Urogynaecological Disorders - Prof. Vik Khullar

The Ehlers-Danlos Society

Shared 1 year ago

382 views

9:56

2022 How to Talk to Your Physician and Make the Most Out of Your Doctor Appointments! - Valerie Slee

The Ehlers-Danlos Society

Shared 1 year ago

253 views

1:05:33

2023 The Princess and the Pea - Sleep, Sleep Apnea and Hypermobility Syndromes - Kateri Champagne

The Ehlers-Danlos Society

Shared 1 year ago

976 views

35:53

2023 Fatigue - The Complex Interplay Between Physical and Mental Health - Dr. James Kustow

The Ehlers-Danlos Society

Shared 1 year ago

2K views

25:04

2023 Fatigue in Headache Disorders - Prof. Manjit Matharu

The Ehlers-Danlos Society

Shared 1 year ago

306 views

10:10

2023 Pacing, Exercise and Managing Daily Activities: Tips from a Community Voice Perspective

The Ehlers-Danlos Society

Shared 1 year ago

496 views

25:53

2023 Chronic Pain and Fatigue - Dr. Helen Cohen

The Ehlers-Danlos Society

Shared 1 year ago

1.6K views

32:38

2023 Dysautonomia, Physical Health and Fatigue - Dr. Peter C. Rowe

The Ehlers-Danlos Society

Shared 1 year ago

2K views

12:29

2023 Introduction to Fatigue in EDS and HSD - Dr. Alan Hakim

The Ehlers-Danlos Society

Shared 1 year ago

1.5K views

36:00

2023 Fatigue in EDS: An Overview of Causes, Assessment, and General Principles of Management

The Ehlers-Danlos Society

Shared 1 year ago

2K views

32:01

2023 Nutrition and Fatigue - Lorna Ryan

The Ehlers-Danlos Society

Shared 1 year ago

753 views

31:57

2023 Pacing, Exercise, and Managing Daily Activities - Emily Rich

The Ehlers-Danlos Society

Shared 1 year ago

1.4K views

27:40

2023 Mast Cell Disorders, Inflammation, and Fatigue - Dr. Anne Maitland

The Ehlers-Danlos Society

Shared 1 year ago

2.7K views

8:37

2023 Community Voice: Mikaila Delgado

The Ehlers-Danlos Society

Shared 1 year ago

522 views

4:56

2023 'I'm Not Just Tired' - Tara Rule

The Ehlers-Danlos Society

Shared 1 year ago

1.2K views

10:43

2023 Living with hEDS and HSD: POTS - Francie Fitzgerald

The Ehlers-Danlos Society

Shared 1 year ago

576 views

12:44

2023 Living with hEDS and HSD: Pain - Maggie Buckley

The Ehlers-Danlos Society

Shared 1 year ago

412 views

23:44

2023 Treatment: Gastrointestinal (GI) Issues - Dr. Isabelle Brock

The Ehlers-Danlos Society

Shared 1 year ago

503 views