Mom on the Spectrum

I'm SO EXCITED to host our first "MOTS Meetup" in NYC!

Interested in joining us? You can find more details here: docs.google.com/forms/d/e/1FAIpQLSdGOu2nm8hCpHmMKA…

If you've already filled out the form, you should've received an email from me this week with a bit more information. (I'll keep new signups in-the-loop, too, don't worry!)

EEK! 😍

Taylor

#autism #audhd #momonthespectrum

4 hours ago | [YT] | 51

Mom on the Spectrum

Did I mention I love this community? Thanks everyone for your incredibly kind and compassionate comments about me skipping this week's livestream.

14 hours ago | [YT] | 228

Mom on the Spectrum

Join me at 3 PM CT today (Wednesday) for my newest video about how to stay hopeful when the world feels like it's a dangerous place.

Video link: https://youtu.be/KO8OLRS4zF0?si=59f6Q...

#autism #autismeducation #autismresearch #autismresources

20 hours ago | [YT] | 125

Mom on the Spectrum

With recent news, legitimate autism education feels more important now than ever before. Take advantage of the final 24 hours to get 15% any of my online autism education classes as we finish up Autism Acceptance Month.

These classes were created after months of studying each individual topic personally and within the context of autistic community groups.

Topics:

👉 How to Unmask (Most comprehensive ⭐️)
👉 Autistic Inertia & Demand Avoidance (Most popular ⭐️)
👉 Meltdowns 101 (Newest ⭐️)

Both Autistic Inertia/Demand Avoidance and Meltdowns 101 would be suitable for both autistic individuals and loved ones. How to Unmask is more specifically geared to the autistic community.

You can find more info for each class here: www.momonthespectrum.life/classes

Use code AUTISMACCEPTANCE2025 at checkout for 15% off

💓 Taylor



P.S. My delayed processing led to me posting this reminder later than I intended to. To accommodate for different time zones, the discount code will actually work through May 1, 2025 (becomes inactive May 2 at 12 AM in all time zones). Please email me if you have any issues! (info@momonthespectrum.life)

#autismeducation #autismresources #autisticadult #audhd #audhdmom #momonthespectrum

1 day ago | [YT] | 128

Mom on the Spectrum

No members-only livestream today (Monday). I need a mental health day. 💓

3 days ago | [YT] | 445

Mom on the Spectrum

Read more here: autisticadvocacy.org/2025/04/hhs-walks-back-autism…

5 days ago | [YT] | 865

Mom on the Spectrum

I'm compiling autism news/information as it becomes available on my website: www.momonthespectrum.life/rfk

I transcribed my latest videos and made the letters to representatives easily accessible so that you can copy/paste/share.

I also added all of the citations and resources I've come across PLUS a safe, private way to pursue an autism diagnosis.

Please share as it's so important to spread accurate information and come together as a community.

www.momonthespectrum.life/rfk

#autism #autism education #rfk #protectautisticprivacy #nothingaboutuswithoutus

5 days ago | [YT] | 414

Mom on the Spectrum

In light of RFK Jr.'s Autism Study, Autistic Patients Should Know:

1. Insurance carriers who receive claims for services can request records and can see some, if not all diagnostic codes for the patient.
2. Individuals can call their insurance carriers to ask how their privacy is protected in the event of government request for protected health information.
3. If needed, individuals who do not want diagnostic information available to their insurance carriers can elect to engage in private pay services.

I'm working hard to keep our community up-to-date with important information. Here are two videos I've made recently that might be helpful:

What you need to know about the new autism data registry: https://youtu.be/ClQASyw0uAQ?si=hocxX...
The New Autism Study | A Disease Registry? Here's what we know: youtube.com/live/EroogZmB5Zk?si=-_-okVJjlilc8vGQ

I'm currently working my way through the Council of Councils meeting with more info about what this might entail. I will post more when I know more.

We're in this together. Deep breaths. Stay focused on what's important. Stim, spend time with your loved ones and on your special interests, drink water, rest.

Taylor

#autism #autismeducation #autismstudy #rfkjr #nothingaboutuswithoutus #thisiswhatautismlookslike #protectautisticprivacy

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5 days ago | [YT] | 565

Mom on the Spectrum

RFK Jr.’s Autism Study: What you need to know

Health Secretary Robert F. Kennedy Jr. is launching a national autism study aggregating private health data from various sources, including medical records, insurance claims, and wearable devices.

Up to 20 research groups will be given grant funding and provided access to this data in order to “treat and manage” autism.


Why People Are Concerned:

PRIVACY: Sensitive health data is being collected
CONSENT: Individuals may not be aware their data is included
LEADERSHIP: RFK Jr.’s views on autism and vaccines raise concerns.

Make Your Voice Heard

Contact Your Representatives:
“Dear {Representative’s Name}, I’m concerned about the NIH and HHS’s new autism data initiative. Please ensure data privacy and informed consent are prioritized.”
Find your representative: house.gov/representatives/find-your-representative

Support Autistic-Led Organizations

ASAN
Autistic Self Advocacy Network
AutisticAdvocacy.org

AASPIRE
Academic Autism Spectrum Partnership in Research and Education
aaspire.org

These organizations advocate for ethical research and the rights of autistic individuals.

You Are Not Alone

Your concerns are valid.

Stay informed, protect your data, and support each other.

Together, we can advocate for ethical practices and respect for our community.

For a video with more info, check out https://youtu.be/ClQASyw0uAQ?si=rHKB6...

#autism #rfk #autismstudy #ProtectAutisticPrivacy #autisticpride #autisticcommunity #autismcommunity #autismeducation #dataprivacy #medicalprivacy #hipaa #handsoffourdata

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1 week ago | [YT] | 1,665

Mom on the Spectrum

New video: What You Need To Know About the New Autism Data Registry (And How to Stay Safe) https://youtu.be/ClQASyw0uAQ?si=0AeGL...

Please watch, share, and check the video's description for already-drafted emails you can send to your representatives/advocacy organizations (I spell EVERYTHING out for you!).

We're in this together.

Taylor

1 week ago | [YT] | 520