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Indian Organization for Rare Diseases

Indian Organization for Rare Diseases

Shared 10 years ago

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1:13

Rare Diseases | Why Caregivers Need Care Too | India Joins the Mission #shorts #rarediseases

Healthy You Online

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0:29

๐ƒ๐ซ. ๐€๐ง๐ง ๐€๐ ๐ง๐ž๐ฌ ๐Œ๐š๐ญ๐ก๐ž๐ฐ ๐‡๐จ๐ง๐จ๐ซ๐ž๐ ๐š๐ญ ๐“๐ก๐ž ๐‘๐š๐ซ๐ž ๐’๐ญ๐š๐ซ ๐€๐ฐ๐š๐ซ๐๐ฌ

Organization for Rare Diseases India - ORDI

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0:57

๐ŸŒŸ One Share. One Donation. One Life Saved. ๐ŸŒŸHelp Us Save Baby Khushi ๐Ÿค21-month-old Baby Khushi is

Darshan Nibe Patil

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2:53

The Shocking TRUTH About India's Genetic Info Hub

Ruchi Pratap

Shared 7 months ago

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6:49

India and the US can empower lives impacted by rare diseases | Dr. Harsha K. Rajasimha | HYO

Healthy You Online

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0:43

๐ƒ๐ซ. ๐’๐š๐ง๐ฃ๐ž๐ž๐ฏ๐š ๐‡๐จ๐ง๐จ๐ซ๐ž๐ ๐š๐ญ ๐“๐ก๐ž ๐‘๐š๐ซ๐ž ๐’๐ญ๐š๐ซ ๐€๐ฐ๐š๐ซ๐๐ฌ

Organization for Rare Diseases India - ORDI

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0:29

๐“๐ž๐š๐ฆ ๐’๐š๐ง๐จ๐Ÿ๐ข ๐‡๐จ๐ง๐จ๐ซ๐ž๐ ๐š๐ญ ๐“๐ก๐ž ๐‘๐š๐ซ๐ž ๐’๐ญ๐š๐ซ ๐€๐ฐ๐š๐ซ๐๐ฌ

Organization for Rare Diseases India - ORDI

Shared 1 year ago

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0:36

๐ƒ๐ซ. ๐Œ๐ž๐ž๐ง๐š๐ค๐ฌ๐ก๐ข ๐๐ก๐š๐ญ ๐‡๐จ๐ง๐จ๐ซ๐ž๐ ๐š๐ญ ๐“๐ก๐ž ๐‘๐š๐ซ๐ž ๐’๐ญ๐š๐ซ ๐€๐ฐ๐š๐ซ๐๐ฌ

Organization for Rare Diseases India - ORDI

Shared 1 year ago

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0:39

๐ˆ๐ฅ๐ฅ๐ฎ๐ฆ๐ข๐ง๐š๐ญ๐ข๐ง๐  ๐‡๐จ๐ฉ๐ž: ๐“๐ก๐ž ๐‘๐š๐ซ๐ž ๐’๐ญ๐š๐ซ ๐€๐ฐ๐š๐ซ๐๐ฌ ๐‚๐ž๐ฅ๐ž๐›๐ซ๐š๐ญ๐ž ๐Ž๐‘๐ƒ๐ˆ'๐ฌ ๐Ÿ๐ŸŽ๐ญ๐ก ๐€๐ง๐ง๐ข๐ฏ๐ž๐ซ๐ฌ๐š๐ซ๐ฒ & ๐ƒ๐๐€ ๐ƒ๐š๐ฒ

Organization for Rare Diseases India - ORDI

Shared 1 year ago

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0:40

๐“๐ž๐š๐ฆ ๐จ๐Ÿ ๐ˆ๐๐•๐ˆ๐€ ๐‡๐จ๐ง๐จ๐ซ๐ž๐ ๐š๐ญ ๐“๐ก๐ž ๐‘๐š๐ซ๐ž ๐’๐ญ๐š๐ซ ๐€๐ฐ๐š๐ซ๐๐ฌ

Organization for Rare Diseases India - ORDI

Shared 1 year ago

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31:00

Episode #33 Hemophilias from genetics to therapy | Rare Info Series | ORDI

Organization for Rare Diseases India - ORDI

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1:10

๐Ÿ‘จโ€๐ŸฆผLife with Muscular Dystrophy: Real Stories of Courage & Strength | MD Talks Ep. 36 ๐ŸŽ™๏ธ

Vedant Kamble

Shared 6 months ago

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2:28

NiemannPick Disease Awareness Day 16th October 2024

NiemannPickIndia

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1:08

"1.5 เคธเคพเคฒ เค•เคพ เค•เคพเคฐเฅเคคเคฟเค•โ€ฆ 16 เค•เคฐเฅ‹เคกเคผ เค•เฅ‡ เค‡เค‚เคœเฅ‡เค•เฅเคถเคจ เคธเฅ‡ เคœเคฟเค‚เคฆเค—เฅ€ เค•เฅ€ เคœเค‚เค—!" #enewsbharat #breakingwithbrains

e-News Bharat

Shared 8 months ago

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1:07

๐Ÿ’ฐ Muscular Dystrophy Treatment Costs: Global vs. India | Why Itโ€™s Unaffordable | MD Talks Ep. 35

Vedant Kamble

Shared 6 months ago

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0:53

A donation of โ‚น100 can save the life of a little girl. Donate Money For Life | #donate #smatype2 ...

Street Of Indore

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7:04

เค†เคœ เคญเฅ€ เคญเคพเคฐเคค เคฎเฅ‡เค‚ เคฒเคพเค–เฅ‹เค‚ rare disease patients เค‡เคฒเคพเคœ เค•เฅ‡ เค‡เค‚เคคเคœเคผเคพเคฐ เคฎเฅ‡เค‚ เคนเฅˆเค‚โ€ฆ

Muscular Dystrophy Awareness MH

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10:05

Honorees and speakers share hope and purpose at Bridging RARE gala | India Abroad

India Abroad

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13:07

๐ŸŒŸ Important Update on Givinostat ๐ŸŒŸเคตเคฟเคกเคฟเค“ เค•เฅ‹ เคชเฅ‚เคฐเคพ เคธเฅเคจเฅ‡ เค“เคฐ เคธเคฎเคœเฅ‡...๐Ÿ‘

Muscular Dystrophy Awareness MH

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0:48

How LGMD Is Diagnosed Step by Step ๐Ÿงฌ | Limb-Girdle Muscular Dystrophy Awareness

Ruchi Pratap

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2:58

Just like in the movie, 'Auro' in real life! Children from Salera village in Raisen | Rare Diseas...

G Media Today

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1:03

๐Ÿ”ฌ Stem Cell Clinics for Muscular Dystrophy: Fraud or Future? | MD Talks Ep. 43

Vedant Kamble

Shared 6 months ago

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7:01

เค†เคœ เคญเฅ€ เคญเคพเคฐเคค เคฎเฅ‡เค‚ เคฒเคพเค–เฅ‹เค‚ rare disease patients เค‡เคฒเคพเคœ เค•เฅ‡ เค‡เค‚เคคเคœเคผเคพเคฐ เคฎเฅ‡เค‚ เคนเฅˆเค‚โ€ฆ

Muscular Dystrophy Awareness MH

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1:00

๐ŸŽ—๏ธ How to Raise Muscular Dystrophy Awareness | Simple Actions That Matter | MD Talks Ep. 41

Vedant Kamble

Shared 6 months ago

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1:01

๐Ÿซ Breathing Support for Muscular Dystrophy โ€“ Tools That Can Save Lives | MD Talks Ep. 46

Vedant Kamble

Shared 6 months ago

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4:08

ORDI RARE STAR AWARD 2024 - KEYA HATKAR

KEYA HATKAR

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2:06

LGMD Trial Ruka | Badi Khabar Sarepta se

Ruchi Pratap

Shared 6 months ago

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0:46

Indore เค•เฅ€ เค…เคจเคฟเค•เคพ เคถเคฐเฅเคฎเคพ เค•เฅ‡ เค‡เคฒเคพเคœ เคฎเฅ‡เค‚ เค–เคฐเฅเคš เคนเฅ‹เค—เคพ 9 เค•เคฐเฅ‹เคกเคผ, เค•เฅเคฐเคพเค‰เคก เคซเค‚เคกเคฟเค— เคฎเฅ‡เค‚ เคœเฅเคŸเคพ เคชเคฐเคฟเคตเคพเคฐ | Indore News

Public Vani News

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0:45

Pediatric Rehab for Menkes Disease | Vihansh Progress at Mission Walk | 8008897700

Mission Walk - Rehab & Recovery

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8:01

๐ŸŒ Lysosomal Storage Disorders (LSDs): Awareness

Muscular Dystrophy Awareness MH

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4:22

เคฆเฅเคฐเฅเคฒเคญ เคฌเฅ€เคฎเคพเคฐเฅ€ เคธเฅ‡ เคชเฅ€เคกเคผเคฟเคค เคฌเคšเฅเคšเฅ‡ เค•เคพ เคธเคซเคฒ เค‘เคชเคฐเฅ‡เคถเคจ เค•เคฐเค•เฅ‡ เคฌเคจเคพเคฏเคพ เคฐเคฟเค•เฅ‰เคฐเฅเคก | Geetanjali Hospital | Exclusive

First India News  

Shared 4 months ago

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8:37

๐ŸŒ Lysosomal Storage Disorders (LSDs): Awareness

Muscular Dystrophy Awareness MH

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1:36

THALASSEMIA, SICKLE CELL AND MENTAL HEALTH | ft. Dr Vinky Rughwani and Dr. Harkishan Mamtani

DR. HARKISHAN MAMTANI Consultant Neuropsychiatrist

Shared 7 months ago

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5:30

Rare Lysosomal Storage Disorder in Children Raises Concern in India

Kanak News  

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8:23

Bone Marrow Donation in India Explained | Dr. Anshul Gupta | How to Become a Donor & Save Lives

Dr. Anshul Gupta | Hematologist - Haemtalks

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