Kayleen Espinoza

Day 71: worshiping with my son who has special needs until miracles breakthrough. 💗

“Therefore I tell you, do not be anxious about your life, what you will eat or what you will drink, nor about your body, what you will put on. Is not life more than food, and the body more than clothing?” - Matthew 6:25

#specialneeds #worship #epilepsy #dystonia #jesus

15 hours ago | [YT] | 510

Kayleen Espinoza

Luke says good morning. Here’s a scripture for us all today.
✨

“Let the morning bring me word of your unfailing love, for I have put my trust in you. Show me the way I should go, for to you I entrust my life.” - Psalm 143:8

Yesterday he wasn’t feeling too good. Running a little temp with increase of seizures and high tone. Similar story today but less spasms. We’re supposed to be traveling to NM next week for Christmas time with the family but we will take it one day at a time and see how Luke’s body responds day by day. 💕
Bless y’all

18 hours ago | [YT] | 715

Kayleen Espinoza

Day 70: worshiping with my son who has special needs until miracles breakthrough ✨

Luke’s having a really hard day today with seizures and high tone which is why he has red cheeks. He might not be feeling too good but we’ll worship through it and use discernment on next steps.

“Trust in the Lord with all your heart, and do not lean on your own understanding. In all your ways submit to him, and he will make your paths straight.” - Proverbs 3:5-6

#worship #specialneeds #epilepsy #dystonia #jesus

1 day ago | [YT] | 773

Kayleen Espinoza

Day 69: worshiping with my son who has special needs until miracles breakthrough ✨

"And without faith it is impossible to please God, because anyone who comes to him must believe that he exists and that he rewards those who earnestly seek him." - Hebrews 11:6

#epilepsy #hypertonia #dystonia #holyspirit #Jesus

2 days ago | [YT] | 759

Kayleen Espinoza

I rebuke these comments in the name of Jesus.

#epilepsy #dystonia #holyspirit #Jesus

3 days ago | [YT] | 360

Kayleen Espinoza

Day 68: worshiping with my son who has special needs until miracles breakthrough ✨

“Help me overcome my unbelief”  - Mark 9:21-24

#holyspirit #SpecialNeedsMama #microcephaly #dystonia #Jesus

3 days ago | [YT] | 701

Kayleen Espinoza

Day 65 of you misunderstanding faith.
God doesn’t need me to prove Him
He’s been proving Himself in my life every single day.
I still pray you have your own Holy Spirit encounter with him so you truly understand.

#holyspirit #SpecialNeedsMama #microcephaly #dystonia

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4 days ago | [YT] | 498

Kayleen Espinoza

I am focused on my son.That’s why I search for answers.
Loving a medically complex child doesn’t mean giving up on learning, advocating, or hoping. It means doing the hard work, asking questions, researching, praying, and fighting for the best quality of life possible.

And for the record, my son doesn’t need to be “normal” to be worthy of effort, dignity, or love.He is already whole.He is already enough.

If advocating for my child makes someone uncomfortable, that says more about them than it does about me. Bless you ✨

#epilepsyawareness #christian #SpecialNeedsMama

4 days ago | [YT] | 552

Kayleen Espinoza

This is why you don’t blindly receive everything doctors say. Most of them are on our side, yes.But that doesn’t mean they’re always right.
When my son Luke was born, he had no desire and no ability to eat by mouth. We didn’t know why. Three days later, an MRI changed our lives forever.

We were told:“Your son’s brain didn’t fully develop. The back part of his brain, the cerebellum appears to have been damaged early in the womb. Parts of the gray and white matter didn’t form correctly.”

Then came the words no parent is ever prepared to hear: “He will never walk. He will never crawl.He will never eat by mouth. And he will have seizures for the rest of his life.”

I had a healthy pregnancy. A smooth delivery. No complications. So we searched for answers. Was it an undetected stroke? The umbilical cord wrapped around his neck for too long? Lack of oxygen that his body miraculously survived?

We ran every genetic test available. We chased understanding, closure, something to explain why. Fast forward 3½ years. More testing. More scans. More specialists.Trying to get his seizures and dystonic movements under control.
And now… we’re told something completely different.

“I don’t see an injury or insult to his cerebellum. I actually believe this is genetic. I highly encourage you to continue testing.”

Me: Huh?

I went back to two of Luke’s 17 specialists, desperate for clarity. I laid it all out, what we were told in the beginning… and what we’re being told now. And i just started crying and questioning it all.
• Can a cerebellum that was damaged be miraculously healed?• Was it ever damaged at all, or was that an assumption made too early?• Do you understand how life-altering this statement is for a parent?

I cried, not because it changes his therapies or his treatments… but because it changes my heart. It changes what I expect. What I prepare for. What I grieve. What I hope for. What hard for me is closure may never come.

Still, no matter the cause, genetic or injury we are beyond blessed to be Luke’s parents.He is a vessel for the Kingdom.
Next steps: continuing genetic testing.And continuing to trust the Author of Luke’s story. 🤍

4 days ago | [YT] | 898

Kayleen Espinoza

Day 66: worshiping with my son who has special needs until miracles breakthrough ✨

“Behold, I am the Lord, the God of all flesh. Is anything too hard for me?" - Jeremiah 32:27

#dystonia #microcephaly #epilepsy #butjesus

5 days ago | [YT] | 856