Stephanie Bethany

Have you our your child taken Leucovorin/folinic acid? Have you noticed any changes positive or negative?

1 week ago | [YT] | 3

Stephanie Bethany

Yeah, so, no causal link without significant confounding factors has been found for years.

Kinda doubt we magically got actual good data that says otherwise when the researchers likely were being directed to find something that likely isn't there.

Years and years of autism research with few answers regarding outside environmental factors, and as long as the government says to find a reason, we finally have a magic answer?

Hard doubt on that one, friend.

Here's the video I did looking at the Tylenol and autism claims from before.

1 week ago | [YT] | 13

Stephanie Bethany

I was thinking about recording today. I have the time for once. But nothing in me really wants to.

Maybe it's depression.
Maybe it's laziness.
Maybe it's poor executive functioning.

Or maybe it's that it feels pointless.

Originally, I wanted people to understand me. Then, I wanted to help people understand themselves and others. I get this desire to "change the world," like if I can just get this information out, it'll change something.

Of course, I've done fun content, too.

But I guess I just feel like it doesn't matter anymore. It just brings anxiety, and people will still think the way they think. Plenty of people talk about autism now and from various perspectives. Cooler, more fun, more interesting, younger, more relatable people speak on it in abundance.

I had a speaking engagement not long ago. And it meant the world to me for the people who were moved or felt seen and understood to come speak with me. And as well-meaning as it was, one person was most impressed by my brief explanation about using person or identity first language. That was so crushing to me. That explaining the language use situation was more impactful than my personal insight on greater matters and advocacy for change.

But isn't that all anyone wants, anyway? To make sure everyone uses the right words? Has the correct opinion?

Then why bother? As I've gone through this journey, I've learned so much. And as I've served the younger population and their families, all this in the online space seems so petty.

It's why I pursued occupational therapy. Because I wanted to make an actual difference in people's lives. And when you're really in it and it's no longer just your life and your perspective, the online political and "advocacy" nonsense is so trivial and surface level. I can't see how using the right language is going to make a difference in the life of my non-speaking client who just wants to be able to have a moment of regulation and understanding instead of always being in flight or fight mode while everyone around them acts like they're not really even there.

So, I'll post again when I feel like it's fun. Or interesting. But mostly, if I feel like it will matter. Today, I don't feel that way.

Maybe posting this will get it out of my system. Maybe I'll be more optimistic soon.

I hope you all are doing well. I appreciate you being here.

3 months ago | [YT] | 78

Stephanie Bethany

I tend to watch YouTube shorts and I'm pretty sure it'd basically mostly reposted TikToks. For that reason, I'm pretty unbothered atm. But what about yall? Do you feel that TikTok is that significantly different than any other platform?

8 months ago | [YT] | 12

Stephanie Bethany

Should I bother trying to post videos in 2025?

9 months ago | [YT] | 22

Stephanie Bethany

My OK State Senator just emailed me fantastic news- OK HB3671 has passed the OK Senate!!

1 year ago | [YT] | 53

Stephanie Bethany

Do you start getting disoriented, like things don't look familiar (such as familiar routes), when you're dysregulated, and it's escalating toward a meltdown? (For example, SIBs)

Let me try the question again with less parantheses:

Do you get disoriented when heading toward a meltdown?

1 year ago | [YT] | 35

Stephanie Bethany

Which video would you prefer to see from me?

2 years ago | [YT] | 43