CMT- A Rare Disease in India

💭 What is something you wish people understood about living with CMT?

#CMTAwareness #CharcotMarieTooth #CMTWarrior #CMTCommunity #RareDisease #InvisibleDisability #Awareness #Support #Research #Inclusion #Hope #CMTFOI #INDIA

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2 days ago | [YT] | 0

CMT- A Rare Disease in India

CMT may slow my steps but it will never stop my journey✌️

#CMTAwareness #CharcotMarieTooth #CMTWarrior #CMTCommunity #RareDisease InvisibleDisability Awareness Support Research Inclusion Hope CMTFOI INDIA

4 days ago | [YT] | 0

CMT- A Rare Disease in India

🌿 A new chapter for the CMT community begins.

After bringing together people, knowledge, support and research, we are taking the next step towards a more connected and informed CMT community.

Introducing CMT VEDA, a new digital platform created to bring trusted CMT knowledge, personalized AI guidance, community connection, research updates and practical support closer to every individual and family living with CMT.

✨ Because every CMT journey is unique, but no one should have to navigate it alone.

📅 20 September 2026
🕑 2:00 PM onwards IST
💻 Online via Google Meet

Join us as we unveil CMT VEDA and explore a new way to Understand. Plan. Connect. Move Forward.

CMT VEDA
Knowledge Today. Stronger Tomorrows. 🌱

1 week ago | [YT] | 0

CMT- A Rare Disease in India

Look beyond what you see. Listen beyond what you hear. Understand beyond what you know. 💙
CMT is real.
The challenges are real.
But so are the strength, resilience, dreams, and hope of every CMT warrior. 💚

This September, let’s turn awareness into understanding, understanding into support, and support into change.
No warrior fights alone. 🫶

#CMTAwareness #CharcotMarieTooth #CMTWarrior #CMTCommunity #RareDisease #InvisibleDisability #Awareness #Support #Research #Inclusion #Hope #CMTFOI #INDIA

1 week ago | [YT] | 0

CMT- A Rare Disease in India

💙 **CMT is not just about what we can’t do. It’s about how we find a way to do it.**

Sometimes, our hands may be weak.
Sometimes, everyday tasks can feel difficult.
And sometimes, asking for help can feel harder than the task itself.

But being a **CMT Warrior** also means finding solutions, adapting, and using what we *can* do to stay independent. 💪🧠

Because sometimes the biggest strength isn’t in our muscles—it’s in our **mind, creativity, and determination.** ✨

♿ **Different ability. Different way. Same independence.**

👉 **What is your favourite CMT life hack or adaptation?** Share it with us! 💙

#CMT #CMTAwareness #CMTAwarenessMonth #CharcotMarieTooth #CMTWarrior #CMTIndia #MyCMTStory #DisabilityAwareness #RareDisease #RareDiseaseAwareness #AdaptiveLiving #Accessibility #CMTCommunity

3 weeks ago | [YT] | 0

CMT- A Rare Disease in India

💙 **Walking Through CMT: Challenges, Strength & Hope** 💙

Join us for an insightful session during **CMT Awareness Month** as we explore the challenges of living with Charcot-Marie-Tooth disease, along with the strength, resilience, and hope that comes with the journey.

🎙️ **Speaker:** Dr. Prabhudev Hiremath
Assistant Professor of Neurology / Paediatric Neurology, Ramaiah Hospital, Bengaluru

🎤 **Moderator:** Dr. Aparna U Simha
Consultant Paediatrician, ORDI’s Rare Clinic

📅 **9 September 2026**
⏰ **4:00 PM – 5:00 PM**
💻 **Join via Zoom**

This is an opportunity to learn, ask questions, and connect with the CMT community. 💙

**Let’s raise awareness, share experiences, and walk this journey together.**

#CMT #CMTAwareness #CMTAwarenessMonth #CharcotMarieTooth #CMTIndia #RareDisease #RareDiseaseAwareness #DisabilityAwareness #CMTCommunity #StrengthAndHope #ORDI #CMTWarriors

3 weeks ago | [YT] | 0

CMT- A Rare Disease in India

Small signs can tell a bigger story - CMT Awareness Month

Day 1 — Look Closer. 👀
Charcot Marie Tooth disease can hide in plain sight.

Subtle signs like frequent falls, high arches, foot deformities, difficulty with footwear, or dropping things may be easy to overlook.

Recognising the signs is the first step toward timely evaluation and diagnosis.

🔎 Look closer.
Know the clues.
Spread awareness.

#CMTAwareness #CharcotMarieTooth #CMTFOI #RareDiseaseAwareness #EarlyDiagnosis #CMTWarriors

3 weeks ago | [YT] | 0

CMT- A Rare Disease in India

💙 **SEPTEMBER IS CMT AWARENESS MONTH** 💙

What does CMT mean to you?

For some, it means **weakness.**
For some, it means **pain.**
For some, it means **a wheelchair.**
For some, it means **adapting.**

But CMT can also mean **strength, courage, acceptance, hope—and a story worth telling.** 💙

Living with CMT is different for everyone. There is no single CMT story.

This September, we want to hear **YOUR story.** 🫶

Complete this sentence:
**“Living with CMT has taught me ______.”**

Share your story, tag us, and help someone feel less alone. 💙

Because **your story matters.**

#CMT #CMTAwareness #CMTAwarenessMonth #CharcotMarieTooth #CMTIndia #MyCMTStory #RareDisease #DisabilityAwareness #InvisibleDisability #StrengthInDisability

3 weeks ago | [YT] | 0

CMT- A Rare Disease in India

*SEPTEMBER IS CMT AWARENESS MONTH*
*_Give Voice to CMT💙💚_*


This month, we stand with individuals and families affected by Charcot-Marie-Tooth disease (CMT), one of the most common inherited neurological disorders.

Every patient journey matters.
Every story shared helps increase awareness.
Every voice strengthens advocacy, research, and hope for better treatments and ultimately a cure.

At CMTFOI, we believe that awareness drives action, knowledge empowers communities, and research creates hope.

💙 Amplify Awareness
📚 Advance Knowledge
🧬 Accelerate a Cure

Together, we can build a future where no one faces CMT alone.
*✨ Know CMT. Challenge the Myths. Give Voice to CMT.*

#CMTFOI #CMTIndia #CharcotMarieTooth #CMT #RareDisease #RareDiseaseAwareness #PatientAdvocacy #Genetics #Genomics #MedicalResearch #CMTWarrior


Instagram Caption
💙 September is CMT Awareness Month 💚

Every story shared increases awareness.
Every patient represented strengthens research.
Every voice brings us closer to better treatments and a cure.

Join us this month as we raise awareness, support families, advocate for research, and give a stronger voice to the CMT community.

✨ Awareness. Support. Strength.

#CMTFOI #CMTIndia #CMTAwarenessMonth #CharcotMarieTooth #RareDiseaseAwareness #PatientAdvocacy #MedicalResearch #Genetics #CMTWarriorFor Instagram,
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3 weeks ago | [YT] | 0

CMT- A Rare Disease in India

🧠 Movement Helps the Brain Build Stronger Pathways



Research suggests that exercise can support neuroplasticity, the brain's ability to learn, adapt, and strengthen neural connections throughout life.

Physical activity has been shown to increase Brain-Derived Neurotrophic Factor (BDNF), a protein involved in learning, neural communication, and adaptation.

For people living with Charcot-Marie-Tooth (CMT), regular physiotherapy may help the nervous system make more effective use of existing neural pathways. Through practice and movement, the brain and body continue to learn and adapt.



💙 Why it matters: Every repetition is a learning opportunity. Consistent movement may help improve mobility, confidence, function, and independence.



At CMTFOI, we believe that awareness drives action and research creates hope. Every patient's journey matters, and every step forward counts.

✅ Learn more about rehabilitation in CMT
✅ Support research and awareness initiatives
✅ Share this post to help others understand the power of movement



Hope. Support. Strength.



#CMTFOI #CMTIndia #CharcotMarieTooth #CMT #RareDisease #RareDiseaseAwareness #PatientAdvocacy #MedicalResearch #Neuroplasticity #BDNF #Physiotherapy #Genetics #Genomics #CMTWarrior

1 month ago | [YT] | 0