The mind still dreams, plans, longs for simple things… But the ME/CFS body just refuses to cooperate..! It’s a cruel irony: Finally “old enough” to live on your own terms, only to be trapped by limitations you never chose.. 🥲
You don’t have to feel grateful for the forced rest. It’s okay to mourn the energy that should have been yours. Your desires are still valid, even when your body can’t follow through.
Quiet solidarity to everyone curled up tonight with a full heart and an empty tank. You are not wasting time—you are surviving something relentless. And you’re not alone! I am right there with you! 😊💜
Keep on surviving, my friends. 💪❤️ And rest without guilt. Tomorrow doesn’t demand anything from you. 🕯️
### ALT Text for the Meme Image: A cozy yet darkly relatable meme with rainbow sparkle border. Bold black text at top: “Finally old enough to do anything I want to.. Yet too tired to actually do any of it..” Below, a cartoon Skeletor in purple robe lounges on a couch under a blanket, holding a glass of red wine and a remote, with a sleeping pink cat on his lap and a warm fireplace in the background. Green circular badge reads “Survival of the Fatigued.” Perfectly captures the exhaustion that overrides newfound freedom.
LIVE is on 1/1/2026 @ 5:00pm CST (Chicago USA time).
👉👉**This is 11pm UK time (1/1/2026), 12am Central Europe time (Jan 2, 2026), and 10am Sydney, Australia time (Jan 2, 2026), 8:30am in Central Australia (Jan 2, 2026).To find out your time conversion, just Google "Jan 1st @ 5:00PM Chicago time to [your time zone or location here]", and it will tell you.
🎁We will chat about future content plans, general Q+A, suggestions, and also a fun activity that I hope becomes a tradition with all my LIVES!😘
**My newest video just came out on Monday (December 22nd) and is special made for people in our community having a hard time right now with the holidays. Please make sure to watch it, and also share it with your groups. Hopefully it helps people through this difficult season.
The world is rushing through its brightest, busiest season.. Parties, shopping, traditions—while many of us move in permanent slow motion. ME/CFS turns December into a month of quiet survival: watching the lights from bed, missing the gatherings, feeling the weight of “should be” on top of the usual exhaustion.
It’s okay if joy feels distant right now. It’s okay if the holidays are just another stretch of days to endure.
You are not missing out because you are failing. You are homebound because this illness is severe, and protecting your body is the bravest thing you can do. Your worth isn’t measured in outings or cheer. Especially for those homebound who are feeling the isolation deepest right now.
### ALT Text for the Meme Image: A holiday-themed meme with rainbow sparkle border. Top text sings: “Tis the season to have FOMO! ♫ Falalalalalalala! ♫ My body goes in slow-mo! ♫ Falalalalalalala! ♫” Below, a sad, half-melted snowman lying in the snow with random objects (8-ball eyes, beer bottle, glove) stuck in it, labeled “ME/CFS SNOWMAN” at the bottom. Green circular badge reads “Survival of the Fatigued.” Captures the exhausted, left-out feeling of chronic illness during the holidays.
The holidays are everywhere.. Lights, music, expectations - while we’re over here bargaining with our bodies: “If I just rest enough now, maybe this flare will pass before New Year’s.” 🎄
But ME/CFS doesn’t care about calendars or traditions. It crashes when it wants, lingers as long as it likes, and laughs at our hopeful little phrases like “this too shall pass.” Some days the uncertainty feels heavier than the fatigue itself..
It’s okay if you’re not feeling festive. It’s okay if survival is the only goal right now. You don’t have to pretend this is temporary when it’s been years. Your pain and limitations are real, and they are enough reason to set every boundary you need.
Quiet solidarity to everyone staring down another holiday season from bed. You are not failing. You are enduring something unimaginable.
(If you have a low-spoon moment, these videos might meet you where you are):
### ALT Text for the Meme Image: A holiday-tired meme with rainbow sparkle border. Bold black text at top: “Can I get an ETA on ‘this too shall pass’…?” Below, the Grinch sits hunched over a small coffee mug, scowling deeply with furrowed brows and a skeptical frown. Green circular badge in corner reads “Survival of the Fatigued.” Captures the weary frustration of waiting for chronic illness flares to end.
PEM crashing, chronic pain flaring, brain fog swallowing thoughts whole, POTS making the world spin. Sometimes it feels like a betrayal from our own bodies..
But- You’re allowed to be angry. You’re allowed to grieve. This illness is relentless, and feeling frustrated doesn’t make you ungrateful.. It makes you human.
Sending the gentlest solidarity to everyone wrestling with that inner conflict today. You are seen, and you are enough, exactly as you are.
Rest when you need to. No explanations required. Keep on surviving, my friends! 💪💜
Some hopefully helpful older videos to check out: 1. What ME/CFS feels like: Living w/ chronic illness explained https://youtu.be/qr4u5qw6LA8
### ALT Text for the Meme Image: A darkly humorous meme with rainbow sparkle border. Top text: “Me: Dear body, I’m sorry I act like I hate you.. I know you’re doing everything you can..” Bottom half shows a man aggressively twisting his own leg with intense expression, labeled “My body: LOOK WHAT I CAN DO!!” surrounded by bold labels “PEM”, “CHRONIC PAIN”, “BRAIN FOG”, “POTS”. Green circular badge reads “Survival of the Fatigued.” Captures the painful irony of chronic illness betrayal.
ME/CFS doesn’t just take your energy. It takes your plans, your job, your friendships, your dignity, and any sense of control over your own body. It leaves you watching life through a window while your body ignores the very treatments meant to help.. 🩻
It’s exhausting, isolating, and cruel. 👉And it NEVER takes a day off..
You’re not lazy, you’re not faking, and you’re not alone in this unfair fight.💜
I am sending quiet solidarity to everyone stuck in bed today (like me) while the world keeps spinning without us. 🌎😢
### ALT Text for the Meme Image: A sarcastic vintage-style meme with rainbow sparkle border. A glamorous woman in an off-shoulder evening gown and pearls gives a weary, unimpressed side-eye. Bold black text at top: “Gosh - I sure do LOVE having a body that reacts to everything, except medical treatments…” Green circular badge in corner reads “Survival of the Fatigued.”
For the rest of the world it’s a cute vintage excuse. For us? It’s literally just our every Sunday. (And Monday. And probably Thursday.) 😅
Staying horizontal isn’t laziness— it’s advanced self-preservation. Some days the biggest accomplishment is protecting the few spoons we woke up with.
👉 Q: What day of the week is your official reat day? Tell us below! (Mine is sabbath Saturday!) ⬇️ 👉👉 Too much PEM to type? Just drop a 🛌 or 💜 to join in.
Keep reigning from your blanket kingdom, my Survivor family! 😜
### ALT Text for the Meme Image: A dreamy vintage-style meme with rainbow sparkle border. A glamorous red-haired woman in a pink satin nightgown lounges in bed, holding an old-fashioned phone to her ear with a sly smile. Bold pink text overlay reads: “Sorry Darling It’s Sunday… I don’t Get Out of Bed on Sundays!” Green circular logo in the corner says “Survival of the Fatigued.” Pure luxurious, unapologetic bed-rot energy.
There’s a strange peace in surrendering to the exhaustion instead of fighting it.. Lately I’ve decided, “still breathing and kinda clean-ish” is the real victory!
Who else is riding the “shower optional” life right now? 🙋♀️🙋🙋♂️
👉 Q: How many days is your current “putting off showering” record at? Confess below! (No judgment, only solidarity). I’m at a month and a half.. And counting..😅⬇️ 👉👉 Too tired to type? Just drop a 🙂 or 💤 to join the club.
And thanks for those of you sticking with me through yet anothor one of my crash channel hiatuses. ❤️ I am hoping to make a new video as soon as I can safely manage- but honestly at this point I have no clue when that will be. 😓
Keep surviving beautifully, my perfectly imperfect MECFS warriors. 🫶
### ALT Text for the Meme Image: A colorful meme with rainbow border and bold black text at the top: “How I sleep when the CFS has me too exhausted to shower all week long:” Below, Squidward from SpongeBob lying in bed with eyes half-closed, pink nightcap and blanket pulled up, surrounded by his usual underwater bedroom decor. Green circular logo in the corner reads “Survival of the Fatigued.” Peak relatable exhaustion energy.
Survival of the Fatigued
Hey Survivors!
The mind still dreams, plans, longs for simple things… But the ME/CFS body just refuses to cooperate..!
It’s a cruel irony: Finally “old enough” to live on your own terms, only to be trapped by limitations you never chose.. 🥲
You don’t have to feel grateful for the forced rest. It’s okay to mourn the energy that should have been yours. Your desires are still valid, even when your body can’t follow through.
Quiet solidarity to everyone curled up tonight with a full heart and an empty tank. You are not wasting time—you are surviving something relentless. And you’re not alone! I am right there with you! 😊💜
Keep on surviving, my friends. 💪❤️
And rest without guilt. Tomorrow doesn’t demand anything from you. 🕯️
If a low-energy moment allows, these videos might speak to the quiet frustration:
☠️1. What ME/CFS feels like: Living w/ chronic illness explained
https://youtu.be/qr4u5qw6LA8
❄️2. ME/CFS: Why Pacing is so Hard to Learn!
https://youtu.be/aKclRPdcxGs
🕯️3. Never Ending Flareup?
https://youtu.be/2PvxugWAdfk
#mecfsmemes #mecfs #chronicillness #spoonie #survivalofthefatigued
---
### ALT Text for the Meme Image:
A cozy yet darkly relatable meme with rainbow sparkle border. Bold black text at top: “Finally old enough to do anything I want to.. Yet too tired to actually do any of it..” Below, a cartoon Skeletor in purple robe lounges on a couch under a blanket, holding a glass of red wine and a remote, with a sleeping pink cat on his lap and a warm fireplace in the background. Green circular badge reads “Survival of the Fatigued.” Perfectly captures the exhaustion that overrides newfound freedom.
2 days ago | [YT] | 35
View 16 replies
Survival of the Fatigued
LIVE is on 1/1/2026 @ 5:00pm CST (Chicago USA time).
👉👉**This is 11pm UK time (1/1/2026), 12am Central Europe time (Jan 2, 2026), and 10am Sydney, Australia time (Jan 2, 2026), 8:30am in Central Australia (Jan 2, 2026).To find out your time conversion, just Google "Jan 1st @ 5:00PM Chicago time to [your time zone or location here]", and it will tell you.
🎁We will chat about future content plans, general Q+A, suggestions, and also a fun activity that I hope becomes a tradition with all my LIVES!😘
1 week ago | [YT] | 10
View 1 reply
Survival of the Fatigued
Should I do a live meet and greet at 5pm CST-USA for New Years? Maybe half an hour to an hour long depending on energy? Let me know!
1 week ago | [YT] | 9
View 12 replies
Survival of the Fatigued
**My newest video just came out on Monday (December 22nd) and is special made for people in our community having a hard time right now with the holidays.
Please make sure to watch it, and also share it with your groups. Hopefully it helps people through this difficult season.
NEW VIDEO: 🎄
👉A Holiday Message for MECFS Spoonies
https://youtu.be/vjSFv986bGA?si=0lxqs...
—————-
My dearest Survivor friends,
The world is rushing through its brightest, busiest season.. Parties, shopping, traditions—while many of us move in permanent slow motion.
ME/CFS turns December into a month of quiet survival: watching the lights from bed, missing the gatherings, feeling the weight of “should be” on top of the usual exhaustion.
It’s okay if joy feels distant right now. It’s okay if the holidays are just another stretch of days to endure.
You are not missing out because you are failing. You are homebound because this illness is severe, and protecting your body is the bravest thing you can do. Your worth isn’t measured in outings or cheer. Especially for those homebound who are feeling the isolation deepest right now.
And if you need more understanding on the harder days, try these videos:
❄️ 1. What ME/CFS feels like: Living w/ chronic illness explained
https://youtu.be/qr4u5qw6LA8
🥶 2. Never Ending Flareup?
https://youtu.be/2PvxugWAdfk
🎄 3. ME/CFS or Depression? The Misdiagnosis Trap You Need to Know!
https://youtu.be/4v3SyL6Zo-w
Rest deeply. The season will pass; your survival matters more.
Keep or surviving, my friends 💪💜
#mecfsmemes #mecfs #chronicillness #spoonie #survivalofthefatigued #pwME #LCandME #CFS #MECFSchristmas #mecfsholidays #CFSmemes
#MECFSandholidaydepression #christmaswithMECFS #severeMECFS #severeCFS #theholidayswithMECFS
---
### ALT Text for the Meme Image:
A holiday-themed meme with rainbow sparkle border. Top text sings: “Tis the season to have FOMO! ♫ Falalalalalalala! ♫ My body goes in slow-mo! ♫ Falalalalalalala! ♫” Below, a sad, half-melted snowman lying in the snow with random objects (8-ball eyes, beer bottle, glove) stuck in it, labeled “ME/CFS SNOWMAN” at the bottom. Green circular badge reads “Survival of the Fatigued.” Captures the exhausted, left-out feeling of chronic illness during the holidays.
1 week ago | [YT] | 30
View 8 replies
Survival of the Fatigued
Hey Survivors…
The holidays are everywhere.. Lights, music, expectations - while we’re over here bargaining with our bodies: “If I just rest enough now, maybe this flare will pass before New Year’s.” 🎄
But ME/CFS doesn’t care about calendars or traditions. It crashes when it wants, lingers as long as it likes, and laughs at our hopeful little phrases like “this too shall pass.”
Some days the uncertainty feels heavier than the fatigue itself..
It’s okay if you’re not feeling festive. It’s okay if survival is the only goal right now.
You don’t have to pretend this is temporary when it’s been years. Your pain and limitations are real, and they are enough reason to set every boundary you need.
Quiet solidarity to everyone staring down another holiday season from bed.
You are not failing. You are enduring something unimaginable.
(If you have a low-spoon moment, these videos might meet you where you are):
1. What ME/CFS feels like: Living w/ chronic illness explained
https://youtu.be/qr4u5qw6LA8
2. Never Ending Flareup?
https://youtu.be/2PvxugWAdfk
3. ME/CFS: Why Pacing is so Hard to Learn!
https://youtu.be/aKclRPdcxGs
Rest without guilt. The world can wait.
Keep on surviving, my friends! 💪💜
#mecfsmemes #mecfs #chronicillness #spoonie #survivalofthefatigued #pwME #LCandME #CFS #MECFSholidays #MECFSchristmas
---
### ALT Text for the Meme Image:
A holiday-tired meme with rainbow sparkle border. Bold black text at top: “Can I get an ETA on ‘this too shall pass’…?” Below, the Grinch sits hunched over a small coffee mug, scowling deeply with furrowed brows and a skeptical frown. Green circular badge in corner reads “Survival of the Fatigued.” Captures the weary frustration of waiting for chronic illness flares to end.
2 weeks ago | [YT] | 35
View 12 replies
Survival of the Fatigued
Hey Survivors…
PEM crashing, chronic pain flaring, brain fog swallowing thoughts whole, POTS making the world spin. Sometimes it feels like a betrayal from our own bodies..
But- You’re allowed to be angry.
You’re allowed to grieve.
This illness is relentless, and feeling frustrated doesn’t make you ungrateful.. It makes you human.
Sending the gentlest solidarity to everyone wrestling with that inner conflict today. You are seen, and you are enough, exactly as you are.
Rest when you need to. No explanations required.
Keep on surviving, my friends! 💪💜
Some hopefully helpful older videos to check out:
1. What ME/CFS feels like: Living w/ chronic illness explained
https://youtu.be/qr4u5qw6LA8
2. ME/CFS: Why Pacing is so Hard to Learn!
https://youtu.be/aKclRPdcxGs
3. Never Ending Flareup?
https://youtu.be/2PvxugWAdfk
#mecfsmemes #mecfs #chronicillness #spoonie #survivalofthefatigued
---
### ALT Text for the Meme Image:
A darkly humorous meme with rainbow sparkle border. Top text: “Me: Dear body, I’m sorry I act like I hate you.. I know you’re doing everything you can..” Bottom half shows a man aggressively twisting his own leg with intense expression, labeled “My body: LOOK WHAT I CAN DO!!” surrounded by bold labels “PEM”, “CHRONIC PAIN”, “BRAIN FOG”, “POTS”. Green circular badge reads “Survival of the Fatigued.” Captures the painful irony of chronic illness betrayal.
2 weeks ago | [YT] | 40
View 33 replies
Survival of the Fatigued
Hey Survivors…
ME/CFS doesn’t just take your energy. It takes your plans, your job, your friendships, your dignity, and any sense of control over your own body.
It leaves you watching life through a window while your body ignores the very treatments meant to help.. 🩻
It’s exhausting, isolating, and cruel.
👉And it NEVER takes a day off..
You’re not lazy, you’re not faking, and you’re not alone in this unfair fight.💜
I am sending quiet solidarity to everyone stuck in bed today (like me) while the world keeps spinning without us. 🌎😢
(If you’ve got the spoons, these videos hopefully might help a little):
1. What ME/CFS feels like: Living w/ chronic illness explained
https://youtu.be/qr4u5qw6LA8
😡2. ME/CFS Drama: Living, NOT Chasing Cures
https://youtu.be/Nv_PSLFn0GM
😰3. ME/CFS and Losing Friends
https://youtu.be/ssDHxurvBSQ
Rest if you can. You’re allowed.
#mecfsmemes #mecfs #chronicillness #spoonie #survivalofthefatigued #pwME #LCandME #cfs #severeCFS #severeMECFS #mecfsmemes #mecfsmeme #myalgicencephalomyelitis #chronicfatiguesyndrome #longcovid #hiddenillness #autoimmunedisease #disabled #bedridden
---
### ALT Text for the Meme Image:
A sarcastic vintage-style meme with rainbow sparkle border. A glamorous woman in an off-shoulder evening gown and pearls gives a weary, unimpressed side-eye. Bold black text at top: “Gosh - I sure do LOVE having a body that reacts to everything, except medical treatments…” Green circular badge in corner reads “Survival of the Fatigued.”
3 weeks ago | [YT] | 35
View 19 replies
Survival of the Fatigued
Hey Survivors!
For the rest of the world it’s a cute vintage excuse. For us? It’s literally just our every Sunday. (And Monday. And probably Thursday.) 😅
Staying horizontal isn’t laziness— it’s advanced self-preservation. Some days the biggest accomplishment is protecting the few spoons we woke up with.
👉 Q: What day of the week is your official reat day? Tell us below! (Mine is sabbath Saturday!) ⬇️
👉👉 Too much PEM to type? Just drop a 🛌 or 💜 to join in.
Keep reigning from your blanket kingdom, my Survivor family! 😜
Show some watch-time love to these spoon-saving videos:
🛌 1. ME/CFS: What New Spoonies Need to Know!
https://youtu.be/_mkKCOfUIKs
💋 2. Sassy ME/CFS TikToks: Chronic illness compilation review
https://youtu.be/20FGVRTGIas
👑 3. What ME/CFS feels like: Living w/ chronic illness explained
https://youtu.be/qr4u5qw6LA8
(Extra kind? Help my parrots munch 🦜🍔🦜 via my Ko-Fi or send a private message!)
👉 www.ko-fi.com/survivalofthefatigued
#mecfsmemes #cfsmemes #bedrot #sundayvibes #mecfs #chronicfatiguesyndrome #myalgicencephalomyelitis #cfs #fibromyalgia #chronicillness #chronicillnessmemes #chronicillnesshumor #spoonie #severecfs #exhaustion #pwME #survivalofthefatigued #invisibleillness #bedridden #LCandME
---
### ALT Text for the Meme Image:
A dreamy vintage-style meme with rainbow sparkle border. A glamorous red-haired woman in a pink satin nightgown lounges in bed, holding an old-fashioned phone to her ear with a sly smile. Bold pink text overlay reads: “Sorry Darling It’s Sunday… I don’t Get Out of Bed on Sundays!” Green circular logo in the corner says “Survival of the Fatigued.” Pure luxurious, unapologetic bed-rot energy.
4 weeks ago | [YT] | 26
View 9 replies
Survival of the Fatigued
Hey Survivors!
There’s a strange peace in surrendering to the exhaustion instead of fighting it..
Lately I’ve decided, “still breathing and kinda clean-ish” is the real victory!
Who else is riding the “shower optional” life right now? 🙋♀️🙋🙋♂️
👉 Q: How many days is your current “putting off showering” record at? Confess below! (No judgment, only solidarity). I’m at a month and a half.. And counting..😅⬇️
👉👉 Too tired to type? Just drop a 🙂 or 💤 to join the club.
And thanks for those of you sticking with me through yet anothor one of my crash channel hiatuses. ❤️
I am hoping to make a new video as soon as I can safely manage- but honestly at this point I have no clue when that will be. 😓
Keep surviving beautifully, my perfectly imperfect MECFS warriors. 🫶
Show some watch-time love to these real-life CFS videos:
😴 1. ME/CFS Drama: Living, NOT Chasing Cures
https://youtu.be/Nv_PSLFn0GM
🛁 2. ME/CFS Best Buys For Winter and Traveling With a Chronic Illness
https://youtu.be/7j67H7eZefo
🫶 3. What ME/CFS feels like: Living w/ chronic illness explained
https://youtu.be/qr4u5qw6LA8
(Extra kind? Help my parrots munch 🦜🍔🦜 via my Ko-Fi or send a private message!)
👉 www.ko-fi.com/survivalofthefatigued
#mecfsmemes #cfsmemes #spongebobmood #showerlater #mecfs #chronicfatiguesyndrome #myalgicencephalomyelitis #cfs #fibromyalgia #chronicillness #chronicillnessmemes #chronicillnesshumor #spoonie #severecfs #exhaustion #pwME #survivalofthefatigued #invisibleillness #bedridden
---
### ALT Text for the Meme Image:
A colorful meme with rainbow border and bold black text at the top: “How I sleep when the CFS has me too exhausted to shower all week long:” Below, Squidward from SpongeBob lying in bed with eyes half-closed, pink nightcap and blanket pulled up, surrounded by his usual underwater bedroom decor. Green circular logo in the corner reads “Survival of the Fatigued.” Peak relatable exhaustion energy.
1 month ago | [YT] | 34
View 23 replies
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