Cancer Journey
Diagnosed with Waldenstrom Macroglobulinemia in 2021
Relapsed in 2026

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komalvlogs

not want any advice because it will make it worse for me anyway.. but we are in situation we met the team at Christie to discuss the treatment option they have the same idea getting BR and they won’t guarantee to do stem cell transplant but it will be discussed if need to - now I felt relief that was awkward I had mixed feeling yes things did change in the Christie the last time I went in 2024 I don’t have much time and we need to make decision do I stick to Clatterbridge cancer centre in Liverpool shall I ignore how they have treated me last 5 months now if you don’t know but I have been sharing some experiences with individual people I had issue and yes I need to say in a way but to be honest it’s draining me and spoke with WMUK charity team as well I had made decision yesterday something else and today now it’s more different. I don’t know how I feel 😰 m stuck and I don’t have much time the more I delay the treatment will be delayed and don’t know if I will be able to treated… with Clatterbridge stem cell will be given I will need to discuss this on Monday 8th June a lot of questions because they asked me to come two days to get treatment it’s the nature of the treatment yes travel from Manchester to Liverpool 2 hours one way the other way tiring on top of chemotherapy I don’t know how this is gonna work unless they allow me to stay overnight there and maybe it can work they told me I cannot be alone … well too bad I live alone 😒

5 hours ago | [YT] | 5